2 Time Ovarian Cancer Survivor & Prophylactic Double Mastectomy with Breast Reconstruction, BRCA Warrior

“I have what?” That was the question I asked out loud after hearing that I had Ovarian Cancer over the phone in 2021, in the middle of the pandemic, after an ‘emergency’ surgery to remove a bursting fallopian tube and attached ovary. 

Little did I understand that this was the start of my journey. After my 1st Ovarian Cancer diagnosis and subsequent fullradical hysterectomy and staging, I underwent genetic testing that may indicate why I developed Ovarian Cancer. We discovered through this simple genetic blood test that I was BRCA1 Positive; positive meaning there is a mutation in my BRCA1 gene.

Everyone has BRCA genes, exactly half from each parent. The gene itself does not cause cancer; as a matter of fact, its job is to repair any broken BRCA DNA that can lead to cancers and uncontrolled tumor growth. (yes plural cancers). The name “BRCA” is an abbreviation for “BReast CAncer gene.” A small percentage of us, yes, both men and women, carry a mutated BRCA gene, about 1 in 400*. BRCA1 or BRCA2. A mutation means the BRCA gene may no longer be effective in repairing broken BRCA DNA, leading to different cancers. 

Primarily responsible for breast cancers, hence the name, for my case, I received my broken gene from my Father, who was a prostate cancer survivor, which is why I underwent the simple genetic blood test. BRCA positive genes are responsible for: Female Breast (60%) & Male (0.2%–1.2% – What? Males? Yes with a BRCA1 Positive), Ovarian Cancers (39%–58%) and less common, but just as deadly, Pancreatic (5%), Prostate (7%–26% of men), melanoma, stomach cancers & rare type of endometrial cancer called uterine serous carcinoma.*

I know that’s a lot of information to digest; however, a necessary explanation as to part of my journey. We relocated from California to North Carolina in 2022 for better health care, just in time. A 2nd recurrence of Ovarian Cancer hit. It was back and in my umbilical cord, abdomen wall & muscles in my stomach area, in early 2023. This is how I met Teal Diva. I signed up for my first 5k post-cancer and the day I went to pick up my packet, I found out I had a recurrence while in line. I was blessed to have people surrounding me at the very EXACT moment. Literally picked up my 5k packet and said I have ovarian cancer again and talk about a big hug and being there for me throughout my Ovarian Cancer walk, AGAIN! EXTREMELY fortunate to have Teal Divas support for me to help me through, something I had never fully experienced until then. 

But wait, there’s more. Being BRCA1 positive, I also underwent MRIs and Mammograms, rotating every 6 months, in addition to the Ovarian Cancer CT every 6 months. We found a tumor that may or may not have been cancer, but not able to be fully determined without a biopsy. After completing loads of research on biopsies for my particular cancer, I did NOT want to complete a biopsy as if the tumor was positive for cancer, which would be triple negative breast cancer for BRCA1 patients like myself. I know that the likelihood of it spreading would be high. 

I was faced with a choice. Wait and see and keep monitoring the tumor until it was very clear through the tests that it wascancer, or complete a prophylactic (meaning before a cancer diagnosis) double mastectomy with reconstruction and never have to complete a Breast MRI or Mammogram again. After much thought and discussion with doctors, friends and others that were in this odd situation of having Ovarian cancer first, rather than Breast, I opted for a prophylactic double mastectomy & immediate reconstruction under my breast muscle as I was not a candidate for over the breast muscle since I have a large frame and had naturally larger breasts. I thought it would be a simple procedure, for me it was not. It was a 10-hour surgery, and the healing time was much more intense than what we thought. The tumor was negative for cancer, THANK GOODNESS! 

That news reinforced the decision that we made, my husband and I, that the prophylactic way was the way to go, as scary and hard as it was to come to the decision. I also found out that my basic anatomy was different on both sides of my body. My left and right bones for my chest wall sit differently, as well as my muscles, discovered during surgery. Slightly. Notsomething that can be tested for before surgery. Hence having problems with my right reconstructed side, but fantastic doctors to walk me through each step, including my right-side implant that flipped over post, my permanent implant placement. However, my doctor, in the office, was able to reflip it back over without surgery (strange I know). I am still healing 8 months in, and next will be nipple reconstruction & aesthetic correction of here and there, probably in 2026. 

I encourage people to request genetic testing through their doctor or independently if there are any of the cancers mentioned above in their family history from either the mother’s or father’s side. As I did not know, until after the fact, where my cancer came from. I had always heard that female cancers could only come from the mother. This is misinformation that must be shared, as well as overcoming the fear of even getting tested. Getting tested does not mean you need to take action by any means. It is information for you to have, should any question arise in your health care journey, preparing you and already being armed with the information to make the best care decision for yourself in the future. It deflates the worry and the what ifs that come along the way, at least for me, it did. If I had known sooner, meaning before 2021, I probably would have completed a prophylactic hysterectomy, hence avoiding Ovarian Cancer all the way around. 

Be Well, Ellyn Fulton, Survivor and Thriver! 

* https://www.cancer.gov/about-cancer/causes-prevention/genetics/brca-fact-sheet

Did you know May is Genetic Testing Awareness Month? Many times in the gynecologic cancer world, we hear about genetic testing and the impact our genes have on our health. Over the next few weeks, we are going to dive into some survivors’ stories that have genetic testing at the core of their diagnosis. The first thing we need to point out is that two types of testing can be done: genetic and genomic testing. They are similar but still different.

Genetic testing is “a test that looks for inherited gene mutations from a sample of your saliva, cells, or blood that could affect your cancer risk. Genomic testing is “one method your doctor can use to predict how your cancer will grow and which treatments might work best against it. It’s sometimes called “DNA sequencing.” The test looks at all your genes rather than a specific one.”

Today, we bring you a story from ovarian cancer survivor Dale, who had both genetic and genomic testing done as a part of her diagnosis and cancer journey.

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I had genetic testing done shortly after being diagnosed with ovarian cancer in June 2016. That showed that I was BRCA negative and gave my doctor other info for treatment plans. 

About a year into my diagnosis, I was asked by my doctor if I wanted genomic testing done. He explained that genomic testing would test my tumor. When he got the results, he told me I had the HER2 gene, and it was a good thing as it would qualify me for additional treatments. After a few failed treatments, I was given the choice of trying a clinical trial of Perjeta and Herceptin due to my HER2 diagnosis. This is a combo used frequently in breast cancer patients. I did fairly well on it, but it had a side effect of intense itching, so I decided to stop it. I’m not sure if it ever got approved for ovarian cancer. I had a few more treatments, then another HER2 trial was available, and at that point, I thought my time was up, as I had a pleural effusion, was having to use a walker, and my options were getting slim. So I said, “What do I have to lose?”. This trial was new and had never been tested on humans. It was called BB1 with Optivo. It was my fountain of youth. After one treatment of the BB1, the plural effusion was gone, everything got better, and I felt great. Unfortunately, after 9 months, I had a slight tumor progression, so I was disqualified from this treatment path. It was back to traditional chemo and more side effects. For a few more years, I had several chemo combos. Just as my options were dwindling, up popped another HER2 drug called Enhertu that was just approved by the FDA for treatment of other cancers, so my Dr. signed me up. That was December of 2023, and I’ve been on it every 4 weeks since, and so far my numbers are going down and my tumors are shrinking. The worst side effects is diarrhea and a lot of foods don’t taste good anymore, therefore I have a hard time eating. I have peripheral neuropathy in both my hands and feet from a previous treatment, so I’m trying different options to help with the pain. I continue to be positive, travel, and do all the things I love to do. 

My care team at Levine Cancer Institute is great, I have complete faith in them and Dr. Naumann. 

Organizations like Teal Diva provide retreats, meetups, chemo shirts, fundraisers, support, and the opportunity to connect with other survivors so we can help one another. They have been great and have had a huge impact with their support throughout my journey. I’ve received cards, gifts, flowers, love, and caring. They are a big part of my life.

Further reading and information in the blog can be found at:

https://www.webmd.com/cancer/what-is-genomic-testing

We are so lucky to have some pretty incredible board members who work behind the scenes supporting Teal Diva and the survivors we serve. Today we hear from board President, Bridget, and learn a little bit about her and why she chose to make Teal Diva a priority in her life.

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Teal Diva : Tell us a little bit about yourself

Bridget : Oh boy, talking about myself—my favorite thing! (Not.) But here goes: I’m an entrepreneur who took a leap of faith in 2021 and started my own project management and accounting company—thanks, COVID! I’ve been happily married to my awesome husband, Joe, for over 15 years, and we have an equally awesome daughter, Cheyenne. But my proudest title? BAM-ma to my grandson, Reece. Faith, Family, and friends mean the world to me—especially my very large family (50+ cousins!). You’ll spot us at Teal Diva events, where we’re the loud, fun, slightly overwhelming crew in Team 4 Claire purple shirts. 

At home, chaos is guaranteed thanks to my four-legged troublemakers, MisDemeanor and Larceny. (Yes, those are their real names. Yes, my husband is a police officer.) When I’m not crunching numbers or managing projects, I’m chasing adrenaline—whether that’s running an Ultra 50K, talking friends or family into crazy workouts, or getting lost hiking on an island. A girl’s got to have fun! Very little I say no to trying at least once—except bacon. Hard pass.

TD : How did you get involved with Teal Diva?

B : My first introduction to Teal Diva was through my dear friend Claire Spence, who invited me to attend the Teal Diva 5K in Uptown Charlotte in 2019. Claire was battling ovarian cancer, and she had been given the incredible opportunity to attend a Teal Diva retreat very last minute. She came back absolutely glowing—talking about the lifelong friendships she made, the support she felt, and the pure joy of being surrounded by women who just got it. (If you haven’t seen the videos from her retreat…check out that blog!! She was the best)

I watched firsthand as Teal Diva lifted her with encouragement, sisterhood, and unwavering support throughout her courageous fight. Seeing what this organization meant to her made a lasting impact on me. Claire’s journey, and the joy Teal Diva brought her, inspired me to get involved—because every woman facing this battle deserves to feel that same love, connection, and strength.

TD : How did you decide you wanted to serve on the Board of Directors?

B : After losing Claire, I wanted to keep her spirit alive in a way that truly honored her. That’s how Team 4 Claire was born. Year after year, so many people showed up, because Claire was so dearly loved. She was pure joy and laughter, and this was my small way of keeping her memory shining. Then came lunch with Shannon. One conversation was all it took—I knew I needed to be more involved, and God brought us together for a reason. Seeing firsthand the impact Teal Diva had on Claire, and now experiencing that same sense of community myself, I realized this was exactly where I was meant to be. I may have lost my very dear friend to ovarian cancer, but through Teal Diva, I’ve gained a sisterhood of incredible women, friendships I never expected, and connections that will last a lifetime.

TD : What role do you hold currently?

B : Not sure how, I think we voted, but here I am—doing my best, as the President of the Board, which mostly means I try to keep things running smoothly, support our amazing Founder and Executive Director Shannon, and avoid breaking anything important. So far, so good… I think! 

TD : What has been the most impactful thing you’ve done as a board member?

B : Without a doubt, witnessing the magic of our retreats in person has been one of the most impactful experiences. Watching these incredible women arrive nervous and uncertain and then leave as sisters is truly hard to put into words. It’s more than just a weekend; it’s a transformation. They don’t just get through it—they emerge stronger, more connected, and filled with hope. Another deeply moving experience has been seeing the impact of our Yes Girl grants. Hearing from the women who receive them and knowing our support eases some of their financial burdens, or physical projects they hadn’t been able to tackle, so they can focus on fighting reinforces just how much Teal Diva makes a difference.

TD : What is your favorite Teal Diva event?

B : This is a tough one because there’s a new contender after our Bourbon, Bubbles, and Bling Gala in November—if you haven’t been, mark your calendar for November 2025! It was an unforgettable night filled with laughter, beautiful connections, and so much fun.

However, if I had to pick just one, the Teal Diva 5K will always be my favorite. It was my first Teal Diva event, and every year since, I’ve been lucky enough to have a team that comes out to honor Claire. If you’ve ever been to a Teal Diva 5K, you may have seen Larceny, my little Frenchton, sprinting like a greyhound. She doesn’t believe in pacing herself (wonder who she gets that from?)! The 5K is always filled with so much energy and love, and it’s incredible to watch it grow each year. I always feel like Claire is there with us, cracking jokes and celebrating alongside us.

TD : Why is the Teal Diva 5k your favorite?  How long have you been participating in it? 

B :We’ve experienced it all—running through Uptown Charlotte, tackling trails at Hodges, dodging (and I quote) “armadillo holes”, pushing through illness, and even braving torrential downpours—but no matter what, we always leave laughing and with wonderful memories. Seeing people stepping up to volunteer, donate, attend virtually (from all over), whichmakes it even more special. 

Any opportunity I get to spend time with the amazing women, and their families, I’ve met through Teal Diva is incredible, but there’s just something about the energy, love, and support at the 5K that keeps me, and my entire team, coming back year after year. Watching this event grow bigger each time, welcoming more survivors, families, and supporters, is truly inspiring. It’s a beautiful reminder that no one fights alone and a chance to honor and remember those we have lost. 

TD : What’s one thing you want people to know about Teal Diva? 

B : Teal Diva is so much more than an organization—it’s a much-needed sisterhood. The impact goes beyond dignity shirts, after-chemo gifts, or financial assistance. The real magic happens when women come together, realizing they’re not alone. They share advice, pray, laugh, and support each other, knowing they aren’t the first—and sadly won’t be the last.

If you’ve ever witnessed these incredible women connecting—laughing, celebrating, lifting each other up—you’d understand. You see the weight they carry every day, and in these moments, that weight lifts, even if just for a little while. It’s about finding joy in the hardest battles, forming friendships that feel like family, and knowing there’s always a tribe of women who just get it.

That’s what makes Teal Diva so special—it’s not just about surviving, it’s about thriving!

TD : Where do you see Teal Diva in the future? 

B : I see Teal Diva continuing to grow, reaching even more women, and expanding our impact in ways we never thought possible. More retreats, more resources, more opportunities for women to connect and feel seen, heard, and supported. I envision a future where every woman facing a gynecologic cancer diagnosis knows she’s not alone—that she has a sisterhood ready to lift her up.

I hope to see our Yes Girl grants grow even bigger, easing the burdens of even more women so they can focus on what truly matters—fighting and healing. And of course, I see our 5K events continuing to grow, bringing together survivors, families, and supporters in even greater numbers, because awareness and community go hand in hand. Most of all, I see Teal Diva being a movement—one that not only supports those in the fight but also educates and advocates so that one day, fewer women will have to face this battle at all.

TD : What’s one thing you are looking forward to in 2025

B : In 2025, I’m beyond excited to watch Teal Diva soar to new heights, reaching even more women and making an even bigger impact. I’m hoping we’ll bring in fresh faces to our board who are ready to roll up their sleeves and help us take things to the next level. The 2025 retreat? It’s going to be unforgettable—I can already feel the magic of our sisterhood growing. On a personal note, I’m ready to take on new challenges, maybe even some wild adventures that will push me out of my comfort zone. (Anyone else up for a little adventure with me?) Here’s to 2025 being a year of growth, transformation, and making memories that will last a lifetime! Let’s do this!

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Volunteers play a crucial role in building stronger, more connected communities. Their selfless dedication brings invaluable support to organizations, providing time, skills, and energy to causes that might otherwise lack resources. Beyond the practical assistance they offer, volunteers inspire a spirit of unity and compassion, encouraging others to contribute and make a positive impact. Their efforts often lead to lasting change and enriching the lives of those they serve. Volunteering also fosters personal growth, offering opportunities for individuals to gain new experiences, develop skills, and build meaningful relationships. The contributions of volunteers are a testament to the power of collective action and the awe-inspiring difference individuals can make when they give their time and talents to benefit others. We have a special place in our hearts for our Teal Diva volunteers, they truly are the heart of our organization. If you are a survivor who has been impacted by Teal Diva, it’s because of a volunteer! Today we are sharing a little behind the scenes and chatted with our Volunteer Coordinator, Joe, to get to know him better and find out why he felt like he wanted to be involved with Teal Diva!

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Teal Diva : How did you first get involved with Teal Diva?

Joe : I first got involved with Teal Diva when one of my closest friends from High School, Claire, was diagnosed with Ovarian Cancer. I decided to get really involved to help spread the message about Gynecological Cancer and educating everyone about this disease. 

TD : When did you first volunteer for Teal Diva? 

J: I first volunteered with Teal Diva in 2021 with Team 4Claire, a team formed for my friend Claire. It was an amazing experience, and it felt great to be a part of a huge cause.

TD : What made you want to not just be a volunteer but take on the role as Volunteer Coordinator? 

J : After my amazing experience with volunteering, I approached the Teal Diva board and asked if they had a need for a volunteer coordinator. The board happily accepted me and showed me the ropes on how to strategically setup events. It has been such a wonderful experience, and I always want to be a part of this amazing program.

TD : What do you want people to know about Teal Diva or a gynecologic cancer diagnosis? 

J : I want everyone to know how important it is to know about the symptoms and the signs. If something feels off, get checked. It is a terrible disease and the sooner you get checked; the sooner you can address the situation.

TD : What would you say to other men, to encourage them to get involved with a non-profit like Teal Diva? 

J : Men need to know about signs and symptoms with their partners or loved ones. We want the woman in our lives to know that we are here for them and support them throughout anything that happens in their lives. 

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Thank you so much Joe for all you do for Teal Diva, and a huge shoutout to ALL of our wonderful volunteers! You all are the heartbeat and hands of our organization and we wouldn’t be where we are today without YOU! Are you interested in joining this amazing group? Click the link below and join us at our next event!

By : Mary Lou, gynecologic cancer survivor

Cancer can be terrifying and lonely. You’re surrounded by family and friends who love you, but they don’t truly know what it’s like. There’s a special bond that only those who’ve walked this path can understand. I was lucky to be chosen to attend Camp Mak-A-Dream in Montana this September, where 48 of us gathered—each at different points in our cancer journeys. Some of us were survivors; others faced recurrence. But together, we were all the same, bound by a sisterhood that offered comfort and healing.

At camp, I could finally relax and be cared for, nurtured, and supported. We had activities for mind, body, and spirit, from challenging zip-lining and rock climbing to laughter-filled drum circles and campfire chats. We even enjoyed a Hollywood-themed dinner, where we broke into small groups to create a play in just 10 minutes—hilarious moments I’ll never forget!

Cancer leaves a mark long after the diagnosis. Every check-up brings anxiety: Is everything still okay? Will this new chemo work? And there’s an invisible line drawn in the sand: life before cancer, life after. Side effects linger, often unnoticed by friends and family—digestive issues, body image struggles, and changes in intimacy. I felt relieved to openly talk about these things with people who understood.

Many good things have come from my cancer. Teal Diva, the support group that carried me through my darkest days, has brought me an incredible tribe of teal sisters. I attended a Teal Diva Retreat that transformed my life, and I’ll keep going back because cancer is a lifelong journey. 

Words can’t capture the strength and comfort these connections provide; they’re beyond expression. These retreats and groups aren’t just about sitting around and crying. They’re filled with laughter, honesty, sharing, and true compassion. It’s real, it’s raw, and it’s healing. The bond we share is unbreakable—a source of strength and comfort that only grows deeper with time.

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Would you like to provide the opportunity for someone diagnosed with a gynecologic cancer the opportunity to attend the Teal Diva sisterhood retreat? Your donation can make that happen, TODAY!

By Claire Wentz

Returning to the workforce after a long-term illness can be a challenging and transformative experience. As you prepare to reenter your career, it’s important to approach the process with a clear mindset and practical strategies. With the right preparation and support, you can successfully navigate this transition, regain your confidence, and find fulfillment in your professional life once again.

Set Realistic Goals

It is crucial to acknowledge the changes in your professional capacity and set realistic goals accordingly. Begin by assessing your current skills and energy levels, and set small, achievable objectives that will propel you forward without overwhelming you. This could mean targeting specific roles that accommodate your present abilities or setting timelines that allow for gradual progression. Regularly updating these goals as you improve or as your circumstances change will help keep you motivated and on track.

Seek Job Opportunities Online

Exploring job opportunities online can efficiently connect you with potential employers. Job boards and recruiting sites are excellent resources for finding openings that match your qualifications and desired work pace. You can filter searches to find roles that are conducive to your current situation, whether it’s remote, flexible, or part-time positions. Utilizing these platforms allows you to cast a wide net and identify the best fit for your career aspirations.

Options for Gradual Work Reentry

If you suspect that a full-time role might overwhelm you at this stage, consider part-time or freelance opportunities. These types of work allow you to manage your energy and health more effectively while still engaging in professional activities. Freelance gigs, in particular, offer the flexibility to work as much or as little as your health permits, providing a perfect balance during your transition period.

Consult Healthcare Professionals

Before making any significant decisions about your return to work, it’s advisable to consult with your healthcare provider. They can offer guidance on how much you can take on and may provide recommendations based on your recovery progress. This step ensures that your reentry into the workforce is aligned with your health priorities and does not jeopardize your well-being.

Strategically Network

Strategic networking can unlock opportunities that aren’t publicly advertised. Connect with former colleagues, mentors, and industry contacts to inform them of your return to work. Utilize networking events, professional groups, and online platforms to expand your reach. These connections can be invaluable in discovering roles that align with your new career goals.

Pursue Further Education Online

Pursuing further education is a strategic way to enhance your career prospects as you return to the workforce. Advancing your knowledge and skills through additional qualifications can open up new opportunities and increase your marketability. For instance, if you’ve worked as a teacher, by obtaining a higher degree in education, you can take on roles that shape curriculum development and policy, contributing to the improvement of learning outcomes. Online degree programs offer flexibility, allowing you to pursue these goals without disrupting your work-life balance—give this a view as you plan your next steps.

Prepare for Job Interviews

Preparing for job interviews is crucial, especially if you need to discuss gaps in your resume due to illness. Practice answers to common questions and think about how to explain your break in a way that focuses on your readiness and capability. Consider role-playing with a friend or mentor to gain confidence in your interviewing skills.

Prioritize Health and Well-being

As you reenter the workforce, continuing to prioritize your health is vital. Maintain the routines that have supported your recovery and manage stress through activities you enjoy. A healthy balance between work and personal life is crucial, as it sustains both your physical health and your professional productivity.

Build a Support Network

Returning to work as a cancer survivor can bring a mix of emotions and challenges, making a strong support network essential during the transition. Start by connecting with trusted coworkers, supervisors, or HR professionals who can provide understanding and practical assistance as you ease back into your role. Open communication about your needs—such as flexible hours, modified tasks, or breaks—can help create a work environment that supports your recovery and productivity.

Outside of work, lean on family, friends, and survivor support groups who understand the unique physical and emotional demands you may face. Organizations and online communities for cancer survivors can also offer valuable advice and encouragement. Teal Diva hosts lots of great events for gynecological cancer survivors that can connect you with peers who can offer you support and guidance no matter where you are in your journey. By surrounding yourself with a mix of personal and professional support, you’ll build a foundation of stability and reassurance as you regain confidence in your work life.

If You’re Unable to Return to Work

If your job won’t let you return after medical leave, start by reviewing your rights under the Family and Medical Leave Act (FMLA), if applicable. FMLA provides eligible employees up to 12 weeks of unpaid leave for medical reasons while ensuring job protection. If your leave qualifies under FMLA, your employer may be violating federal law by refusing your return. Also, review company policies and any paperwork you signed when taking leave to ensure you understand the agreed-upon terms and timeline. Document all communications with your employer, including emails, letters, and conversations, as they may serve as evidence if needed.

If your situation feels unresolved, consider consulting with a legal professional specializing in employment law. They can help determine if your rights under FMLA, the Americans with Disabilities Act (ADA), or state laws were violated. Under ADA, employers are required to provide reasonable accommodations, which may include modified duties or a flexible return date, if your condition qualifies as a disability. If your employer refuses to accommodate you without proper justification, this may be grounds for legal action. In the meantime, explore options for temporary financial assistance or short-term disability benefits to bridge the gap while you assess your next steps.

Successfully reentering the workforce after a long-term illness requires careful planning, resilience, and a proactive approach. By focusing on your strengths, seeking support when needed, and staying open to new opportunities, you can navigate this transition with confidence. Remember, each step forward is progress, and with the right mindset, you can build a fulfilling and rewarding career once again. Take the time to prioritize your well-being as you embark on this next chapter.

We are excited to close out vaginal and vulvar cancer awareness month with another survivor story from the Teal Diva sisterhood. Melanie graciously let us into her world for just a little bit. Thank you Melanie and all the vaginal and vulvar cancer survivors who are bravely standing up against the stigma of a gynecologic cancer diagnosis, we’re honored to stand with you.

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Teal Diva: Tell us a little bit about yourself, what are your hobbies, what is your favorite thing to do, what’s the coolest thing you’ve done over the past few months?

TD: How did you get connected with Teal Diva?

M: I was introduced to Teal Diva through my oncology team at Novant Health. They truly want to attack cancer from all angles. They realize that being able to spend time with people who are going through or have gone through the same or similar experiences as you but still emit positive energy can have a profound effect on the healing process. Teal Diva provides that healing space. 

TD: Tell us a little bit about your diagnosis.

M: Soooooo…I  had what I thought was a persistent yeast infection. One that I ignored for a little while then attempted to treat myself with over-the-counter meds and home remedies. When that didn’t work I went to my PCP who ruled out a yeast infection and suggested that I make an appointment with my gynecologist. My gynecologist had left the practice so I decided to wait until after the holidays. After the holidays I  got caught up in the hamster wheel of life. It was the week after Mother’s Day 2024 that I was diagnosed with stage 3 vulvar cancer. A cancer I had never heard of, never knew existed.

TD: What was the most challenging thing about your diagnosis?

M: Emotionally the most challenging thing was telling my girls, ages 25 and 13, that I had cancer.  It was extremely hard managing my emotions, fears, and uncertainty while at the same attempting to assuage theirs. Nevertheless,  when I told them “I’m going to kick cancer’s ass!” I  meant it. Physically the most challenging was no doubt the side effects of the chemo regimen and daily radiation. However, the radiation oncology team was amazingly attentive and encouraging. I kept my focus on doing whatever was necessary and reminding myself that what I was going through was temporary. I just had to keep going day by day to reach my end goal. 

TD: What do you want people to know about a vulvar and vaginal cancer diagnosis?

M: First of all, I want people to know that they exist!  There are commercials about lung and prostate cancers. We as females are educated from a young age about how to perform self breast exams. But never had I ever heard even a whisper of vulvar or vaginal cancer. Because of this, I had no idea what to look out for. I assumed I was suffering from an abnormally long “normal” female nuisance.   If I had been aware of the signs and symptoms I would have been more proactive,  been diagnosed earlier, and not have had to undergo such intense treatment. 

TD: How can we Stop the Stigma when it comes to vulvar, vaginal, and gyn cancers?

M: I think what we’re doing now is the way to Stop the Stigma: having open conversations. I am quick to share my testimony, and I  wear bracelets, hats, shirts, etc. to help bring awareness and hopefully start a conversation. 

TD: What’s one thing you’re looking forward to in 2025?

M: THRIVING!

My name is Bryna Freeman and I’m a massage therapist and wellness enthusiast living and working in Lititz, PA. I’ve been a self-employed massage therapist and have been running my business for 17 years, and love helping my clients. I am also a travel advisor on the side, as one of my passions is traveling. Outside of work, I enjoy yoga, working out, dancing, and prioritizing both physical and mental well-being.  I’ve raised my 19-year-old daughter on my own since her birth, and I am proud to see her thriving as a college freshman. Next month I’m celebrating my 59th birthday and my second clear scan by treating myself to a holistic retreat in Mexico. 

I found Teal Diva through a Facebook page for women with vaginal cancer. Someone posted about the upcoming retreat they were having and I applied and was one of 20 very fortunate women to be selected for the retreat in Saluda, NC. This retreat was so incredibly therapeutic for me, and it was the first time I got to talk with another woman who had vaginal cancer. Up until that point, I felt so alone in my diagnosis because it’s so rare and I didn’t know anyone who had vaginal cancer. 

Before getting diagnosed with vaginal cancer, I thought I was perfectly healthy. About 6 months before getting diagnosed, I started having a few symptoms, like abdominal discomfort, weight loss, and discharge. I went to my family doctor twice, about these symptoms, but they brushed them off as other things. I even had a pap test at that time and it came back negative, however, during that test, the doctor completely missed the golf ball-sized tumor because the speculum was apparently pushing it out of the way. One morning I woke up and when I went to the bathroom, there was an enormous amount of blood in the toilet. I immediately knew something was wrong, so I drove myself to urgent care, they sent me to the emergency room, (all this right in the middle of covid), and since I wasn’t still bleeding, all they did was a blood test, told me everything looked fine and that my period “must be trying to come back” and they sent me home. I didn’t think much more about it, but fortunately, the exact same thing happened one week later. This time I called the gynecologist and they told me to come in immediately. That was the first time I heard the word cancer, and that I had a very large tumor in my vagina. From there I was sent to the cancer center and the tests began. I had stage 3 vaginal cancer with metastasis to inguinal lymph nodes. That began my 2 ½ year journey of multiple rounds of chemotherapy, radiation, brachytherapy, and lots of alternative treatments on the side, like intravenous mistletoe and vitamin C, and a drastic change to my diet. I finished my last round of chemotherapy this past May and I am currently receiving infusions every 6 weeks of the immunotherapy, Keytruda.

One of the most challenging things about my diagnosis was that my daughter had just turned 16, and I have been the sole provider for us since she was born. The first thing I said to my oncology doctor when she told me I had cancer was “You need to keep me alive until my daughter graduates high school”. After receiving bad news over and over again, I had to come to terms with the fact that I may not be here to raise my daughter. 

On top of coming to terms with my diagnosis, I also had a business to run. I worked through all of my cancer treatments, giving massages to my clients when I felt absolutely awful, but I had no other choice. 
When women ask me how I knew I had cancer, I always share my story, because if my family doctor had been more thorough, I might have gotten diagnosed earlier, and not then spent 2 more years chasing cancer through my lymphatic system as it continued to spread.  I tell women that if they feel something isn’t right in their body, keep pursuing it, get a second opinion, and trust your instincts. 

When I was told I had vaginal cancer, I didn’t even know that was a type of cancer. I asked the doctor, “Do you mean cervical, uterine, or ovarian?” and that was the first time I learned about vaginal cancer. For some reason, GYN cancers come with a different stigma than other cancers, like breast cancer. I was embarrassed to even tell people what type of cancer I had, (I have no idea why), so when I posted on my Facebook page that I had cancer, I only mentioned that it was a very rare cancer in women. It wasn’t until months later that I realized I needed to be a voice for women and tell my story even if it helps even just one other woman. I hope that by telling our stories and speaking out, without shame, we can remove the stigma of GYN cancers, and work to get as much attention as breast cancer does. 

I’m looking forward to a healthy, happy, and cancer-free year, as the past 3 years have been incredibly stressful. I feel like I can finally take a breath and work at getting my body healthy again, make plans to travel more, and enjoy my friends and family. I often say that in a weird way, I have gratitude for my cancer journey, because it has made me realize what’s truly important in life, and to not stress the small stuff. I will never take a moment of my beautiful life for granted. 

We are excited to introduce you to Natalie, a designer, traveler, therapist, and gyn cancer survivor from the Western North Carolina area hit hard with recent flooding.

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Teal Diva: Just to start tell me a little bit about yourself, where are you from, some hobbies you have, what makes you YOU!  

Natalie: I am from a small town called Bunn, North Carolina. At an early age, I knew I was quite different than those around me. I went to college at Appalachian State and earned my master’s at Chapel Hill. As I went through the mental health training, I realized I was unique. Now we know this “uniqueness” as neurodiversity and ADHD. It was nice to understand these things about myself and begin to repackage them as strengths and superpowers instead of deficits. With the newfound freedom to live life against the grain, I embraced my creativity and began traveling and exploring other cultures around the world. In between jobs, I would go for months at a time, getting lost (and found) in the world. During this time I made friends in Thailand, India, and Nepal. I was inspired by the fluorite and eccentric fabrics I found. I began slowly partnering with others to create. As I built closer relationships with them and their families, I saw their struggles and wanted to help. In 2010 Sabai Sabai was born. It continued as my hobby until I left my career in 2016.

TD: How did you make the transition from being a mental health therapist to a clothing designer? 

N: I am a mental health therapist who went rogue. Combined with my longtime fascination with traveling, connecting with others, and clothing design, I started a company that focuses on slow fashion, and multi-wear use designs. I design my clothing lines each year while traveling around the world to collaborate with small artisans and often feature yearly fundraisers. Sabai is the creative outlet I can pour into while balancing the burnout of an emotionally taxing job as a therapist. Sabai was born out of the need for balance and healing.

TD: What drew you to the creative world and designing?  What inspires you? 

N: When I was young, my grandmother taught me how to sew my own Barbie clothes. I thought it was the coolest thing to create with her. She taught me resourceful creativity. I have always been a creative person. I originally went to college forstudio art. I felt like an art degree was not pragmatic and shifted to social work. Here I am many years later with a balance of both.

TD: Tell us a little bit about your diagnosis.  Where did you find your strength?  What was the hardest?  Did you have a community?  

N: The timing of my diagnosis was tragic. Over the winter of 2020, I was designing my clothing line, excited to return. I felt like I had finally had a good stride with bending events and festivals. I knew which ones were successful, and worth it, and had projected great success for 2020. However, we all know how that went. Actually, at the end of March 2020, I was stuck in Vietnam while the whole world was shutting down. I was able to get the last flight out as the whole world was shutting down. It was a very intense time for me. When I returned home, I continued to experience atypical symptoms. For two years I had had abnormal discharge. Treating me for all types of conditions, none of which put a dent in the issues I was having. It only continued to get worse. I was often dismissed and not taken seriously. I continued to ask questions and was cleared by many health professionals. I continued to persist and demand they send me somewhere else. I ended up in a fertility clinic. And the doctor said they were confused as I told him my story. He asked me if I had a biopsy or transvaginal ultrasound. I had not. He told me those were the first things that he would do. I left that appointment feeling heard, understood, and hopeful. Two days later I had my diagnosis, Stage 2 endocervical cancer. I was diagnosed on June 5  in the middle of a global pandemic. I lived alone during this time, and it was an extremely difficult time in my life. My parents and siblings live far away. Most of my friends were too afraid to be around me for fear of passing something to me. I had a couple of close friends, not able to handle the diagnosis and chose to distance themselves.  My family did show up for me. They drove from far distances quarantined for 14 days prior and took turns staying off and on with me. My first hurdle was a rushed egg harvesting process. I was 38 and was so hopeful to have kids one day.  Egg harvesting was a huge success. We raised enough funds and they collected 44 eggs that are still in storage to this day. The next step was surgery and waiting on the pathology report. Surgery went well and I had a wonderful surgeon. It was interesting staying in the hospital during this time, no visitors were allowed. Only my mother could come during certain hours. Again another lonesome time. After three days, I was released and began my recovery at home. After pathology came through it showed a high LSI, intent for the cancer to travel. This dictated low-dose chemo and 28 sessions of radiation.  Through the fall and into December, I went through my treatments. It ended with a blood transfusion right before Christmas. And 2021 I recovered and regained my strength, spending a lot of time in the garden. My garden was my happy place. I got really into growing Dahlias. The perfection of nature took my mind off of all my losses. Through this time I struggled with HRT and the loss of my fertility. But in 2022 I was ready to rebound. I went back into mental health practice in 2023. I opened my first private practice and began looking for my first retail store.

 TD: How did you get back to designing after your diagnosis? 

N: After my recovery, I initially went back to work as a mental health therapist. At the time, after the covid pandemic, therapy services were in high demand. I was in a new environment, nursing homes. I was still processing my own grief and felt like I had more in common with this population. I feel like my recent battle served them well. However, my creative and exploration thirst was waiting to be quenched. 2021/2022 focused on becoming stronger so that I could travel again.

TD: When did you open your retail store and where is it located?

N: I opened my retail store in December 2023. Location is 32 A Biltmore Ave., Asheville, NC 28801. Downtown.

TD: What was that experience like? 

N: It took me almost a year to find the right location. It was a true hunt and labor of love. By the time I found the place, I was so ready. It only took me two weeks to get it prepared and opened. I was so excited! Over the next nine months, we continue to build progress. After surviving our initial winter months, which are noticeably less busy, we begin to thrive in this location! We received so much positive feedback and genuine connections in the store. People loved to hear the stories of the artisans and how the designs were brought to life! We were so successful I was contemplating shifting to a bigger store. I was super proud of our growth in such a short time! The future seemed bright!

TD: Tell us you’re experience between opening your retail store and now.

N: Things seemed bright and that life was turning around for me after years of sadness and hardships. I was working hard in both of my careers and sacrificing a lot to get ahead. I was very proud of my progress and tenacity. Now? Honestly? After the massive flooding and devastation to our area in September 2024, I feel quite defeated. I think if I had more time to regain my footing, I would be able to bounce back a little bit better but I’m struggling. Today I received another grant denial. I’m eligible but there’s not enough money to go around. It seems like a lot of the grants are going to a lottery.

TD: What can people do to help you now? 

N: People can help by shopping online with me, spreading my message, and engaging with my social media posts. Donations are always very helpful. I have a GoFundMe that would help me pay rent and staff during this difficult time. Tourism has not returned to the Ashville area and we are enduring 3 extremely slow months. Another way to help is to refer us to other clothing businesses that match our vibe and might be interested in carrying our clothing!

TD: What are your dreams for the future, for you, for your store, for your designs? 

N: I’m struggling to identify the new dream. I want to go back to what I created, but that’s not looking possible. I’d love to see Sabai thrive online and in other stores across America! I want to see my business not only survive but thrive! 

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A huge thank you to Natalie for sharing her story and passions with our Teal Diva family. If you are interested in helping her and her shop Sabai Sabai, please reach out to her via social media or through her website.

Gwen’s journey is nothing short of extraordinary.  A resilient woman from Houston, TX,  she has faced immense physical, emotional, and financial challenges, yet she continues to shine brightly as a beacon of hope.

Diagnosed with stage IVb Cervical Cancer. Gwen has battled through 3 strokes, and 2 mild heart attacks, all while leading the Roy L Jackson Community Outreach Center in memory of her late father who passed from lung cancer. The Roy L Jackson Community Outreach Center provides crucial resources and case management for cancer warriors and survivors. 

Despite facing eviction, the repossession of her car, and a period without health insurance, Gwen never lost sight of her purpose, she had to step down from a job she loved as a case manager at Harmony House Inc. but remained Unwavering in her commitment to supporting others through her non-profit. Gwen’s ability to persevere has been a source of inspiration, and her dedication has earned her 2024 Erica Frazier Stum Living Life with Cancer Award from Cervivor, a recognition she cherishes deeply.  For Gwen, this honor signifies the importance of legacy “Individuals never die  if their name is still spoken.”

Through her work with Cervivor, Gwen has also built meaningful connections with the Founder of GET in Good with Your Health, Lindsay Gullatte-Lee.  Together, they travel, host health fairs/popup shops, and advocate for cervical cancer awareness and HPV vaccines. The founder of Serenity, Courage & Wisdom, Inc. Keesha Carter, a courageous woman, who joins Lindsay and Gwen sometimes on the road. They form a powerful team, known as “We Dem Girlz ” working tirelessly to eliminate Cervical Cancer one state at a time.  Gwen’s strength, faith, and unwavering commitment continue to inspire all she encounters on her journey.

More information about Roy L Jackson Community Outreach Center can be found below

By Christy Chambers

Shannon Routh, the founder of Teal Diva, often talks about the fact that survivors/thrivers fight so hard for life. Teal Diva helps those same people LIVE life after a diagnosis.

I’m a Stage 4b metastatic cervical cancer survivor, who is currently in remission. I was composing a blog entry and wrote the phrase ‘I was given a second chance at living’. I paused and was going to correct it to “a second chance at life”. But then I thought which do I mean? Are they different?

I think they are. We have all been granted a life. It is generally determined by the length of time from life – death; your existence. But that doesn’t really give a full explanation of our time here on earth, does it? Number of years doesn’t say much about who you are/were as a person.

You see it’s all about the ‘ – ‘. What looks like a seemingly insignificant line between life and death is your legacy. I think when we are faced with the fact that we might not be here on Earth as long as we’d hoped, we begin to wonder how will we be remembered. What did I accomplish that will leave a lasting impression? Who was I? And then that leads to the big question: Who am I now?

The good news is the future isn’t written yet; you can still change your legacy.

So now that you have a little time to really live, ask yourself: Are you thriving or surviving? When we struggle in life it may seem like just coping is a victory. Survival mode is a natural default: there is a certain comfort in staying in that state because it’s familiar. But it’s not living, it’s merely existing. Thriving is facing your fears and moving past them; it’s choosing to be uncomfortable and growing from the experience. Thriving is not about the circumstances (oftentimes you can’t change those) but how you respond. A thrive mindset doesn’t happen overnight but it’s attainable.

The first step is to commit to it. It’s a choice! From there you can: get to know yourself; find things that give you joy: purge things (and sometimes people!) that don’t serve your higher purpose; etc.

Why does any of that matter?
Because if the legacy I want to leave is one of love, kindness, generosity, and joy then I must first find and cultivate those qualities in myself! Only then can I bestow them on others.

Kerri Grote, who passed from brain cancer, wrote that a shaman asked
her, “Are you running towards life or running away from death?”

It’s a big question and one we don’t normally ponder, I’d like to think that cancer shifted my perspective. Instead of being preoccupied with death, I hope I am running full tilt towards life. A life I am creating as I go, fearlessly embracing every moment and gleaning every lesson I can.
Who am I? A cervivor, thriver, and an optimist “who sees the world through the eyes of possibility.” That’s the legacy I want to leave.

Come with me – let’s live our dash!

By Lindsay Gullatte-Lee 
Get In Good With Your Health

At the age of 44, I was diagnosed with Stage IIIC Cervical Cancer, a moment that changed the trajectory of my life. The diagnosis came as a shock, not only because of the severity but because, like many others, I wasn’t fully aware of the risks associated with cervical cancer or the fact that it could be prevented. I quickly realized I wasn’t alone in my lack of knowledge. Many people, especially within underserved communities, were unaware of HPV (Human Papillomavirus) or the ways it could lead to cervical cancer. It became my mission to change that, and that’s how I transformed from a patient to a passionate patient advocate.

I never wanted anyone else to go through the isolation and fear I experienced. I wanted to ensure that people, especially in communities of color, were informed about the HPV vaccine and cervical cancer prevention, and most importantly, had access to resources that could change their health outcomes. This led to the creation of my nonprofit, Get In Good With Your Health. Through health fairs, pop-up shops, and other community outreach programs, we aim to bring awareness to cervical cancer prevention and the importance of the HPV vaccination, while also highlighting local businesses that contribute to healthier communities and minds.

One of the most transformative moments in my journey was when I met Gwen a Stage IV Cancer Thriver at a Cervivor event, specifically at the Communities of Color Retreat. Gwen, a powerhouse in the world of nonprofit work, had already established the Roy L. Jackson Community Outreach Center in memory of her father. She resonated with my vision and decided to come on board to partner with me in the fight for cervical cancer awareness. Together, we have been traveling from state to state, providing crucial resources, holding workshops, and educating communities on the importance of prevention, early detection, and treatment.

But our work doesn’t stop there. In addition to our advocacy and outreach efforts, my organization also collects items for comfort packages that we donate to patients currently undergoing treatment. It’s a small gesture, but it’s one that brings hope and comfort to those in the midst of their battle. The strength and resilience of cancer patients inspire me every day, and I am determined to ensure that no one has to face their journey alone.

I am committed to taking this message nationwide—hoping to reach all 50 states and make a tangible difference in people’s lives. I want everyone to know that cervical cancer is preventable, and resources are available to help.

We can’t do it alone, though. If you’re interested in supporting the mission to raise awareness and help those impacted by cervical cancer, please consider donating to either of our organizations. Your donation will help fund educational resources, health fairs, and comfort packages for patients in need.

To donate or learn more, please reach out via email at:

– *Get In Good With Your Health*: getingoodwithyourhealth01@gmail.com

– *Roy L. Jackson Community Outreach Center*: rljcommunityoc@gmail.com

Together, we can create a world where no one has to face cervical cancer without support and knowledge. Thank you for joining us on this life-saving journey.

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Teal Diva by the Numbers

Cultivating strength through meaningful connections that extend into the communities we serve.

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There’s still time and there’s still a need

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We are EXCITED for our Charlotte 5K May 3, 2025!  All we need is you!  We are looking for walkers, runners, sponsors, vendors, and volunteers. 

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Upcoming Teal Diva Volunteer Opportunities

Would you like to give back to Teal Diva with your time and talents? We have some upcoming community events where we need a few volunteers to stand at a Teal Diva table and pass out information and tell people all the fantastic things that Teal Diva is doing in the GYN cancer survivor community! Grab a friend, volunteer for a few hours! There are many ways to support a non-profit, and volunteering is one anyone can do! Interested?

Email our volunteer coordinator at volunteer@tealdiva.org

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Shannon Routh

In December 2009, I was receiving chemotherapy and it was just before Christmas. I remember someone walking around handing out gifts and how sweet the gesture was.  It was all through a friend I had met, Sharon Grammer, and her organization, Fighting Cancer Inc. During the twelve days of Christmas, she created an initiative called Project Elf.  Various people/groups would volunteer for different days and pass out snacks and small gifts to anyone receiving any type of treatment during the twelve days of Christmas. In 2010, I asked how we could help and we have tried to help every year since then.  Mostly it has been me and my husband, but then friends would also want to come along and this year, the Teal Diva board even got in on the fun!

I volunteer with Project Elf every year because I know how it feels to be on the receiving end.  The holidays are tough. And a cancer diagnosis, chemotherapy radiation…it is all hard enough…now throw in the holidays too. It is an emotional roller coaster. We wish to bring a little joy and even offer hope to those who, like me, are at the hospital during the holidays.  And if you know JJ and I, you know we love to bring in a bit of fun with whatever we do, and this is no exception. There have been years when he even dressed as Elf on the Shelf!

This is an amazing project to be a part of year after year.  Thank you to everyone who makes this moment happen for so many, we are truly honored to be a part of it.

https://www.wsoctv.com/news/local/project-elf-spreads-cheer-those-spending-christmas-week-hospital/BA4WS5RP65BWLFNRTXXHSUICI4

Today on the Teal Diva blog we are highlighting a little behind the scenes! Teal Diva has a dedicated Board of Directors who volunteer their time to work on many different commitments that support Teal Diva and our survivor community. We sat down with Jasmine, one of our new board members to learn a little more about her and what led her to serve Teal Diva.  

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Teal Diva: What is your connection to Teal Diva? 

Jasmine: I was first introduced to Teal Diva many years ago, through my mom, who is an ovarian cancer survivor. 

TD: Why did you decide you wanted to be a member of the Teal Diva board? 

J: I wanted to find a way to give back to my community. When Shannon made a social media post that she needed board members, it seemed like a perfect opportunity for me to serve and give back to an organization that’s personal to me. 

TD: How long have you served on the Teal Diva board? 

J: About 4 months now.

TD: What position/committees are you serving Teal Diva through? 

J: I serve as a member of the fundraising committee and whatever else is needed.

TD: What is one thing you’re looking forward to in 2025 for Teal Diva? 

J: I am most looking forward to the growth of the organization! More awareness, ongoing fundraising, and participating in a ‘Yes Girl!’ project.

TD: What is one goal you have for Teal Diva? 

J: A personal goal would be to do my part to get more minority women involved with the organization. Teal Diva is so inclusive and I would love for that to be shown outwardly in our presence. 

TD: What would you say to anyone who wants to donate to Teal Diva?

J: Just do it. We are boots on the ground, helping the women in our community. It could be your neighbor, your barista, your child’s teacher, etc. We are there to help the women who need it the most.

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Thank you so much Jasmine, we are thrilled to have you and your talents behind Teal Diva. If you are interested in more behind the scenes, or if you feel the call to volunteer for any of our programs and positions, please connect with us!