By Claire Wentz

A cancer diagnosis reshapes every part of life — body, mind, and spirit. Self-care in this journey is not about perfection or relentless positivity; it’s about gentleness, presence, and honoring your needs. Caring for your whole self can support healing, resilience, and a deeper sense of peace, even amid uncertainty.

Key Takeaways

• Small, intentional acts of self-care create big shifts in wellbeing.
• Spiritual wellness—whatever that means to you—can restore strength and calm.
• Nutrition, movement, and rest should adapt to your energy and treatment plan.
• Setting boundaries, saying “no,” and finding community help protect emotional balance.
• Mindfulness and gratitude can turn daily moments into sources of healing.

Nourishing the Body with Compassion

What you eat during treatment matters less than how you approach nourishment. Focus on gentle foods that comfort and strengthen: whole grains, fruits, vegetables, and plenty of hydration. Some people find that small, frequent meals help manage nausea and fatigue.

If you’re unsure what’s safe or helpful, consult a dietitian who specializes in oncology. Listening to your body (not comparing it to others) is the most compassionate approach.

The Power of Movement

Exercise can be a grounding form of care, even in small doses. Walking around the block, stretching in bed, or practicing gentle yoga can reduce fatigue, improve mood, and help with sleep. Before starting or adjusting an exercise plan, talk with your healthcare provider. The goal isn’t intensity. Instead, it’s presence.

Managing Stress Through Stillness and Breath

Spiritual Grounding: Finding Meaning and Connection

Spiritual wellness isn’t about religion unless you want it to be. It’s about connection to yourself, to others, and to something larger than your diagnosis. Some people find comfort in prayer, others in nature, art, or journaling. Lighting a candle, listening to sacred music, or writing a daily gratitude note can create small moments of transcendence.

Here’s one approach to reconnecting with spiritual strength:

Practice	Purpose	Example
Journaling	Clarifies emotions and releases worry	Write “What am I learning from this moment?”
Prayer or Affirmation	Invites peace and hope	“May I be gentle with myself today.”
Time in Nature	Restores calm and presence	Sit outdoors and notice your breath and surroundings

The Strength of Boundaries and Support

Learning to say “no” is a vital part of self-care. Declining extra commitments allows space for healing. Share openly with loved ones about what support helps most — whether that’s meals, company, or quiet.

How to Build Your Support Circle:

• Identify three people you can call when you need comfort or practical help.
• Join a cancer support group in your community or online.
• Ask one trusted person to help manage updates or appointments when you’re tired.

Caring for Your Inner World

Self-care is not just about the physical; it’s about the emotional and spiritual landscape within you. Create a ritual of peace — morning tea, soft music, or a nightly gratitude reflection. These simple actions reinforce that you are more than your diagnosis.

Keeping Track of Your Health and Records

Staying organized can help you feel empowered in your care journey. Maintain a digital or paper file of your test results, medications, and treatment notes so that you and your care team always have access. Saving these records as PDFs keeps them consistent and easy to share. You can also try this simple tool to convert files to PDF with ease.

Daily Practices for Whole-Self Care

To anchor wellness in your day, try these gentle actions:

• Drink water regularly, even when not thirsty.
• Eat something fresh and colorful once a day.
• Rest without guilt — naps are medicine.
• Step outside for sunlight or fresh air.
• Repeat an affirmation: “I am allowed to rest and heal.”
• End your day with gratitude for one small good thing.

The Heart of Healing: Staying Positive Without Pressure

Staying positive doesn’t mean ignoring pain or fear. It means allowing those emotions while still noticing moments of joy, beauty, and connection. Resilience grows when we make space for both hope and honesty.

Frequently Asked (and Deeply Felt) Questions

These questions often arise for people navigating cancer and self-care:

1. How can I balance treatment demands with personal time?
Start by scheduling recovery days after treatments. Protect your rest the way you’d protect an appointment. Delegate errands or ask loved ones to handle small tasks.

2. What if I feel disconnected from my old spiritual beliefs?
It’s normal to question faith or meaning during illness. Explore new expressions — reading poetry, talking with a chaplain, or meditating outdoors. Allow your spirituality to evolve naturally.

3. Is it selfish to prioritize my needs over others’?
Not at all. Healing requires energy and attention. Meeting your own needs first allows you to give from overflow, not depletion.

4. How do I talk to friends who don’t know what to say?
Let them know honesty is okay. You might say, “I don’t need answers — I just need your presence.” Many people appreciate clear guidance on how to help.

5. Can mindfulness really reduce treatment anxiety?
Yes. Research shows that mindful breathing and grounding techniques can lower stress hormones and improve sleep, making treatments easier to tolerate.

6. What’s one thing I can do when everything feels overwhelming?
Pause. Place your hand over your heart, take a slow breath, and remind yourself: “I am safe in this moment.” Simple grounding can bring calm even in chaos.

Conclusion

Healing is not linear, and self-care isn’t a checklist to complete. It’s a rhythm — of rest and action, connection and solitude, hope and acceptance. Each act of care, no matter how small, is an act of courage. You are not alone on this path, and every gentle choice you make in your own favor is a form of healing.

My story is a story of elephants—and of hope.

Elephants are deeply social and emotional beings. Their families are led by females, built on lifelong bonds, and often include non-relatives who are welcomed as their own. They mourn their dead. They protect the vulnerable. In many ways, they are just like us.

I grew up with an incredible family of origin. But this is a story about the families we choose—and the ones who choose us.

In 1990, I moved from Minnesota to attend UNC Charlotte, knowing no one and having never set foot in North Carolina. I found my first chosen family in the theatre department. Long nights in costume shops and scene shops forged lifelong bonds. We were united by art, passion, and purpose. I met my future husband there, and when we married in 2002, our wedding party was filled not only with nieces, but with members of our theatre family—people who had become kin.

Over the years, we were adopted into more herds: work families, hobby families, and eventually our own, when our son was born in 2010.

Then, in May 2022, everything changed.

What I assumed was menopause led to a long-overdue exam—and a diagnosis of cervical cancer. I was initially staged at 1, with a treatment plan that felt manageable. But sharing the news felt overwhelming. How do you keep everyone informed without reliving the trauma over and over?

I created a private Facebook page called What a Beautiful Mess. What began as a way to share updates quickly became something much more. It was therapeutic. It was honest. And it became a community—mostly women—who laughed and cried with me, brought meals, offered rides, and held space for my fear.

Then, in June 2022, a scan revealed the cancer had spread to my lymph nodes. I was re-staged to Stage 4b. There is a big difference between Stage 1 and Stage 4.

Still searching for connection, I googled “cervical cancer support” and found Cervivor—a global community of patient advocates. From the moment I joined, I was welcomed. These women understood instantly what I was going through. For the first time, I wasn’t explaining—I was being understood.

After countless treatments, surgeries, side effects, and setbacks, I received the words every cancer patient dreams of hearing: N.E.D.—No Evidence of Disease in May 2023. My many circles celebrated together.

In August 2023, I added another circle to my family when I was chosen to attend a Teal Diva Retreat. It was my first time spending extended, intentional time with other gynecologic cancer survivors and thrivers—and it was truly life-changing. I formed deep friendships and experienced a level of sisterhood I had never known before.

So much happened in the mountains that weekend, but as they say, the first rule of the retreat is: don’t talk about the retreat (if you know, you know).

Since then, I have remained an active participant in Teal Diva events and was later honored with the opportunity to facilitate at another retreat—an experience that felt both humbling and full-circle.

In September 2023, I attended Cervivor School in Seattle, where I was trained in storytelling for advocacy. Soon after, I successfully submitted proclamations declaring January 2024 Cervical Cancer Awareness Month at both the county and state level—standing proudly before my community to use my voice for change.

People joke that cancer is “the gift that keeps on giving.” But the truth is this: cancer gave me a community. A fierce, compassionate, unstoppable circle of women I now call family.

My advocacy logo is an elephant with a cervical cancer ribbon, inspired by this truth:
When female elephants sense danger, they circle up—protecting the vulnerable, masking weakness, and standing guard with fierce love.

There is always room in my family for more elephants.

Story written by: Christy Chambers | photo credit: Molly Dockery Photography

Ellyn and Debra first met through a social meetup, unaware that their brief introduction would grow into a meaningful bond. In October, both women were selected to attend the Teal Diva Retreat—an experience designed to create a safe, nurturing space where attendees can heal, build lasting friendships, and develop vital support networks.

When Debra learned that Ellyn was facing surgery alone, she didn’t hesitate. Debra and her husband arranged to pick Ellyn up and take her to the hospital, and Debra stayed by her side throughout the entire day—waiting during the procedure, taking careful notes during the post-surgery consultation, and ensuring Ellyn made it home safely.

What began as a simple introduction became a powerful example of connection, compassion, and the life-changing impact of community.

What a great example of a little lift – small acts of kindness that “lift” a woman’s spirits, reminding her she’s not alone in her journey. Little Lifts are just one part of Teal Diva’s Sisterhood Series. The Sisterhood Series is where we meet outside the clinic — a space for connection, laughter, and healing through shared experience. It’s about rediscovering yourself, building friendships, and remembering that joy still exists, even in the midst of cancer. It encompasses Art Therapy, Eco Therapy, Social Meetups, Little Lifts and Hope Notes.

In this giving month of December, let us remember that the most meaningful gifts are not always material. The gift of oneself—of time, presence, and compassion—is often the greatest gift of all. This simple act of kindness became a powerful reminder that community truly changes lives, and that sometimes the deepest healing comes from knowing someone genuinely cares. Connection is the best medicine.

by Cheryl Van Allen

When Teal Divas posted their Facebook Question “I’m not just a survivor, I’m a ___________” I was hesitant to respond.  All the other posts were ones of encouragement and strength.  These women, these strong, resilient women, women like me who are now or in the past having to face down this beast of a disease, this silent killer, posted “I’m not just a survivor, I’m a thrived, a warrior, a woman of faith, an advocate.”  And that is USUALLY the type of post I would make, too!  It is in my nature to be “glass half full.”  But I wrote what I was feeling in that moment.   “I’m not just a survivor but I am a-fraid.”

My name is Cheryl Van Allen, and I’m a Warrior who has been battling Stage IIIC Ovarian Cancer for three years.  I have high grade serous carcinoma, am platinum resistant and am about to start my 4th line of defense in 3 years. 

During those three years and 3 lines of defense, I’ve had a massive debulking surgery, 2 allergic reactions to drugs that ended up with an epi-pen (or two!) and ER visits.  I’ve had to have cataract surgery due to side effects, and had a full 6 treatments of a drug I’m allergic to via a process called desensitization, which meant being hospitalized for the infusions overnight.  It has been a long, bumpy road with MANY MANY days and nights of fear, sadness, disbelief, devastation and sickness, plus all the other fun side effects like baldness and neuropathy, just to name a couple.  There were days I never left my pj’s, just sat in a rocker and read, did NYT puzzles, watched comedy movies to make me laugh and texted with friends.

But those three years have also brought SO MUCH LOVE and some GREAT adventures.  I was humbled by the support of friends, far and near, who cooked for us or sent us gift cards, who sent snail mail, text messages, gifts both wonderful and silly, and MUCH needed prayers for me, my husband and my now 25 year old son.  My husband has been my absolute ROCK – taking me to all my treatments and appointments.  I am BEYOND grateful for these people, and the amazing team who has kept me alive for these past 3 years!   

My husband and I have traveled more than we had our whole lives in these past three years, some alone, some with family, some with friends – Key West, NYC, New Orleans, Ocean City, a two week trip of a lifetime to Italy and France, and most recently, Seattle.  I even did my very FIRST solo trip to NYC, which was SO freeing and empowering!!  We’ve had so many moments of sheer joy experiencing new places, cultures and meeting people along the way, as well as spending treasured moments with friends and family.

Normally, I write about joy, gratitude and encourage others to LIVE their lives to the fullest.  But on the day Teal Divas posted that question in FB?  I had just gotten bad news – my genetic testing came back with no matches to trials, my cancer was back and tumors were all growing (I can actually feel one, which is SO scary) and I was facing down a lessening number of options for treatment. It was starting to feel like the chapters in the book of my life were coming to a close.  THAT was why in that moment, I chose to write:

“I’m not just a survivor – I’m a-fraid.  Afraid that they will run out of treatments to keep me alive while we pray for a cure.  Afraid of leaving my son and husband mother/wife-less.  Afraid of not having more time.  But fear won’t stop me…just makes me take time to process before I pivot.”

I have since processed all this news and pivoted to “we have a plan, let’s kick the beast’s butt!”   I am back to “I FIGHT so I can LIVE, for myself and my family and friends.”  I am back to “I fight because this drug may be the one, or at LEAST the one that keeps me alive till they FIND or MAKE the one!”  That is the person I am, 95% of the time.

But there is that other 5% – and I believe transparency is incredibly important.  We shouldn’t have to fake it to make it, to put on a happy face all the time.  People need to know how scary this is for us, that the emotional toll is as challenging as the physical.  We are not always feeling like warriors.  Sometimes, no matter how much people tell us we are not alone?  We really are – inside our heads, with our scary thoughts, alone.  No one can truly understand – except other survivors and warriors. 

Thank you, Teal Diva, for giving us a place to encourage, a place to trumpet success, but also a place to be transparent, to feel seen, and for giving us the opportunity to support or be supported by other survivors and warriors.

For cancer survivors, a trusted primary care doctor isn’t just another name on a chart—it’s a vital partner in long-term wellness. When your long-time physician retires, it can feel unsettling. The good news: with preparation, organization, and the right tools, you can smoothly transition to a new healthcare provider who understands your history and helps you thrive.

What Matters Most

When your doctor retires, start by gathering your medical records, organizing insurance documents, and identifying doctors familiar with cancer survivorship care. Use digital tools to share health information securely. Interview potential doctors, verify credentials, and trust your instincts before committing.

Why Choosing the Right Primary Care Doctor Matters

Cancer survivors often require more coordinated care—monitoring for recurrence, managing side effects, and addressing emotional health. A new physician must understand these layers of care and communicate effectively with specialists, nutritionists, and mental health professionals.

Organizing Your Medical and Insurance Records

Before meeting potential doctors, ensure your medical information is complete, clear, and easily shareable. Store treatment summaries, medication lists, and insurance documents in one accessible location.

If you have large or complex medical files, using a tool to split PDF documents allows you to quickly divide large files into smaller, topic-specific sections—like lab results, imaging, or oncology notes. Once you’ve separated the pages, you can rename and share them with new doctors, specialists, or caregivers as needed.

Pro Tip: Keep both printed and digital copies of your core medical documents. Back up digital versions to secure cloud storage platforms such as Google Drive, Dropbox, or Microsoft OneDrive.

Steps to Find the Right New Doctor

Step	Action	Purpose
1. Ask for referrals	Contact your oncologist, nurses, or patient navigator	They know doctors experienced with cancer survivors
2. Check your insurance provider list	Visit your insurer’s website	Ensures your new doctor is covered under your plan
3. Review professional credentials	Look up physicians on Healthgrades or AMA Doctor Finder	Verify board certifications and patient reviews
4. Schedule consultation calls	Discuss experience, communication style, and philosophy	Ensures compatibility and shared values
5. Transfer records early	Contact your old office before it closes	Prevents information loss or gaps in care

Checklist: Before You Meet Your New Doctor

• Updated medication list
• Cancer treatment summary (ask your oncologist for one)
• Latest imaging and lab reports
• Health insurance card
• Emergency contacts
• Questions you want to ask

Keep this checklist stored in your patient portal or a note-taking app like Notion.

How-To: Prepare for Your First Appointment

1. Research your new doctor
   Read reviews, clinic information, and office hours.
   
   
2. Bring all essential records
   Print or securely email recent test results.
   
   
3. Share your survivorship goals
   Explain ongoing symptoms or concerns.
   
   
4. Discuss communication preferences
   Ask how to reach your doctor between visits (portal, email, or phone).
   
   
5. Plan follow-up steps
   Schedule your next visit or referrals immediately.

For additional structure, explore American Cancer Society Survivorship Care Guidelines for templates you can use to communicate with your new provider.

Tips to Make the Transition Easier

• Keep your records portable: Store a summary of your treatment on a flash drive or secure cloud folder.
  
  
• Review your medication list regularly: Use a health app like MyChart to keep medications up to date.
  
  
• Verify clinic accessibility: Consider distance, parking, and telehealth availability.
  
  
• Confirm communication practices: Ensure your doctor offers online portals for appointment reminders and messaging.
  
  
• Build a trust foundation: Discuss your priorities openly and set expectations early.

Product Highlight: A Tool That Simplifies Health Organization

If you’re managing multiple medical documents and records, Evernote can help you stay organized. You can scan, upload, and categorize your health information—like lab results, insurance cards, and medication lists—into secure, searchable notebooks. During doctor visits, quickly access important details or share updates without digging through paperwork.

FAQ

Q1: Should I tell my new doctor about my entire cancer history?
Yes—provide a full treatment summary and note any ongoing effects or medications. Context helps your doctor tailor care effectively.

Q2: What if my old doctor’s office already closed?
Contact your hospital’s medical records department or state medical board. Many retain files for several years.

Q3: How do I know if a doctor understands survivorship care?
Ask specific questions: “How often do you work with cancer survivors?” or “How do you coordinate care with oncologists?”

Q4: Is it okay to switch doctors again later?
Absolutely. Continuity matters, but so does comfort. If communication or care quality isn’t right, you can always make a change.

Q5: Are virtual appointments safe for follow-ups?
Yes, for routine check-ins or reviewing lab results. Verify your telehealth provider follows HIPAA-compliant standards.

Glossary

• Primary Care Physician (PCP): A doctor who provides general health care and coordinates specialist care.
• Survivorship Care Plan: A document summarizing cancer treatment and outlining follow-up care.
• Health Portal: Secure online access for medical records, appointments, and communication.
• Continuity of Care: Ongoing management of a patient’s health through consistent medical relationships.
• Telehealth: Remote medical services using video or phone communication.

Losing a trusted doctor is never easy, especially after cancer treatment. But with preparation, digital organization, and the right partnerships, you can build a new foundation of care—one that keeps you healthy, informed, and confident about the road ahead.

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Glenda’s journey with ovarian cancer began with bloating, back pain, and unusual bleeding — classic symptoms of ovarian cancer that were dismissed for over a year. Today, she shares her story of how adversity inspired her to give back to the ovarian cancer community.  THANK YOU, Glenda, for sharing your story with us and your work to influence ovarian cancer in Australia! 

“I was told my symptoms were menopause. My doctor even said, ‘Oh, we all get aches and pains.’ I felt dismissed and ignored.”  

After finding a new doctor, Glenda learned she had Stage 4 epithelial high-grade serous ovarian cancer. “Hearing the diagnosis, I felt like the floor split apart, and I was falling, hitting the sides as I descended. My life would never be the same again.”  

Glenda knew that she couldn’t control the cancer, but she knew there were things that she could do for herself that would help with cancer, the treatments, and, of course, her mental health.   

“I juiced, walked to chemo, adopted a plant-based diet, meditated daily, and made art.  

Her message to women: “It is YOUR body. If something doesn’t feel right, keep going to doctors until one hears you. Go to 100 doctors if need be. Also, slow down. My life was crazy hectic, but now, I take time to look after myself. I don’t work as hard. I sit in my backyard and find contentment in watching the clothes dry in the breeze. I journal my thoughts and feelings. I enjoy life a lot more.” 

Now, 8 years into her survivorship, Glenda works as an ovarian cancer ambassador with the OCRF in Australia. She shares her story widely, reminding us: “I’m not scaring people, I’m awaring them.”  

“If my doctor had acted on my first symptoms that had appeared back in 2016, my cancer would have been diagnosed at a much earlier stage. Yes, I am alive and well now. But being diagnosed earlier would have prevented me from experiencing physical pain for so long, and maybe my treatment may have been less severe.”  

“Women have been ignored for far too long,” Glenda concludes. “Our bodies are temples and are precious beyond words. Value yourselves and persist when things don’t feel right. You are the captain of your own ship.”  

My work with OCRF has taken my face around Australia, my home, for the annual “Frocktober” event in the form of billboards, posters, and some good old-fashioned community awareness. This event is a wonderful fundraising event where people wear dress-ups, including their favourite frock. I have also participated in a stair challenge in Melbourne, where I climbed 1800 stairs to raise funds and awareness! This year, in August, I spoke and shared my story at the Cancer Summit in Sydney, which was a great privilege! I love being an ambassador as it’s fun, but ultimately, it allows the public to donate funds for research, along with reading up about all things ovarian cancer. This can only increase the intensity of research and knowledge, along with HOPE for all women experiencing ovarian cancer, now and in the future. A screening test is just around the corner, which is a fantastic prospect! 

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I’ve heard the words “you have cancer” twice in my life, once for myself in 2021 and again in 2025 with my mom.  I never thought my own battle with cancer would be in the lessons learned and used to help guide my mom through her battle.  My journey afforded me the opportunity to help guide my mom’s cancer journey. Although our diagnosis was different, we both had “cancer”. I have been in Georgia for over a month, attending every appointment and trying to help my mom take some of the responsibility off my brother.   

I understand the nuances of navigating healthcare and cancer care.  I’ve been able to ask the hard questions and make appointments because a diagnosis is a full-time job.  A full-time job that no one can truly prepare you for, but in my case, I’ve been able to help my mom process, understand, and navigate this journey.  Although having ovarian cancer is different from breast cancer, I am still learning more each day.  I don’t look at myself as a caregiver but more as an advocate for my mom, a buffer for issues, and help my mom understand a cancer diagnosis and how to navigate life. In difficult moments, I step back to clear my mind and make a plan before making decisions, whether I’m in the role of a patient, advocate, or caregiver.  My motto is “Take it an hour at a time, a day at a time if needed”.  I try to remind my mom of how she told me I could do this, and I was strong. Now I am reminding her of her words that have carried me through a lot of struggles.  The advice I would give to a caregiver is to live in the moment. You won’t get that time back.  

I always believe in HOPE. That’s been my word every year since February 13, 2021, at 3:45 pm, and I shared this word with my mom.  I lost my mom on July 31st, 2025. Although she did not make it, I hope the next ovarian cancer patient will.  Hope means to keep going and hope for a cure.  My mom raised me to become involved with politics.  I promised her I would continue sharing my story and now hers. I wake up hoping I can make her proud. 

-Lashelle 

Breast Cancer Patient Policy Advocate/Lobbyist 

This story is in memory of Rosalyn, Lashelle’s mom. 

By Claire Wentz

Feeling Whole Again: Everyday Wellness Strategies for Life After Cancer Remission 

Remission isn’t the end. It’s a new beginning you didn’t ask for — but now you’re living it. There’s no parade, no guidebook, just a quiet return to routines that somehow feel unfamiliar. You might look fine on paper, yet still carry questions that can’t be scanned for. That’s okay. Healing is nonlinear. This isn’t about “getting back to normal” — it’s about building a rhythm that makes space for how far you’ve come. Below are some tactile, no-fluff ways to enhance your well-being without burning out your bandwidth. 

Start the Day with Grounded Energy 

You don’t need a bootcamp morning. You need one that doesn’t betray your body. After remission, energy might feel inconsistent — some days you’re wired, other days you’re sandbagged by invisible fatigue. The goal isn’t to outsmart it but to reset gently. A morning routine with hydration before screens or caffeine can cue your nervous system toward regulation instead of reaction. Stack in sunlight, five quiet breaths, and something tactile — a hot washcloth, a soft shirt — to reconnect to the physical world before it starts demanding from you. 

Eat to Be Alive, Not Measured 

Food during and after treatment often carried transactional weight: calories for survival, proteins for repair, ingredients to decode. Now, you get to eat with less math and more freedom. This means slowly returning to trusting hunger and fullness cues rather than overanalyzing every bite. It’s not about perfection or purity — it’s about peace. You may need to reintroduce joy to your plate: something crunchy, nostalgic, or just messy. And that’s not indulgent — it’s biological sanity. Let meals nourish your identity, not just your metrics. 

Move to Meet Your Mood 

Forget “getting back in shape.” That old fitness framing is punishing and pointless. Post-remission bodies don’t always follow the same output rules. But what they do crave is circulation — blood, breath, momentum. Movement doesn’t have to be programmed to be potent. It’s a tool to modulate emotion, metabolize worry, and reclaim agency. Even short sessions can surprise you with how they boost emotional resilience, especially when done outside routine. You’re not trying to outperform — you’re trying to feel things move again. That counts. 

Reclaim Direction Through Professional Growth 

After remission, some days feel aimless — like your calendar lost its stakes. That’s why revisiting long-term aspirations can help anchor your forward motion. Structured learning with a master of business administration online builds more than credentials: it sharpens strategic decision-making and financial analysis — both of which strengthen your ability to evaluate options and lead your life with intention. You’re not hustling for status; you’re choosing rhythm and mental engagement on your own terms. When your identity gets rebuilt by choice instead of circumstance, healing takes on momentum. 

Don’t Let Scanxiety Steal the Week 

You mark the calendar. You pretend you forgot. You feel it in your stomach days before. The scans that once saved your life now hold it hostage. “Scanxiety” isn’t irrational — it’s an embodied memory. You can’t logic it away, but you can develop distraction and grounding techniques that soften its grip. Think hand-based activities (puzzles, kneading dough, clay), structured conversations, or forward-scheduled tasks that claim your attention. You’re allowed to compartmentalize — that’s not denial. It’s survival architecture. 

Watch for Leaks in Social Energy 

Everyone’s relieved, and so they talk louder. They say you’re back. You’re not. Social energy post-treatment doesn’t refill the same way, and some conversations hit like sandpaper. Reclaiming your capacity starts with noticing who drains you — and who doesn’t. Let yourself connect with other survivors who won’t flinch at your language or your lulls. Social rest is a real category. It doesn’t mean isolation. It means choosing presence over performance. If a text feels like work, wait. That pause is intelligence, not guilt. 

You Don’t Owe Anyone a Grand Narrative 

You don’t have to “make sense” of everything. Some parts of your story don’t resolve, and some might never feel empowering. That’s not brokenness. That’s honesty. Closure doesn’t arrive on a timeline — it emerges in traces. You might express feelings through journaling, creative rituals, or micro-reflections that no one else reads. The pressure to package your experience into something motivational is a trap. Let ambiguity breathe. What you’ve survived already is the meaning — it doesn’t need a caption. 

Remission is a threshold, not a finish line. It asks you to build from pieces that don’t always fit neatly — a mix of gratitude, grief, and unfinished rewiring. There’s no one blueprint for how to feel “whole,” but there are daily movements that help you feel here. No optimization needed. Just small, human-sized adjustments that acknowledge the full terrain of your recovery — cognitive, emotional, cellular. You don’t have to do it all. But if something in your day today feels more like you, that’s the work. That’s the win. 

Join the Teal Diva community to connect with a sisterhood of strength, support, and empowerment for those impacted by gynecologic cancer, and discover how you can make a difference today! 

We’re closing this series with a powerful collection of survivor voices—each one a testament to strength, resilience, and hope.

Survivors were invited to finish this sentence: “I’m not just a survivor, I’m a ________.” 

Their words bring the conversation full circle, celebrating life beyond cancer and the many ways survivorship can be defined.

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Advocate

Advocate

Human

A person who cares. No one knows what it is like to go through this better than someone going through it.

New person

A person who cares. No one knows what it is like to go through this better than someone going through it.

Diva

Strong woman trying to make great memories with my family. Take one milestone at a time and achieve it!!!

I’m a mom. I’m a career woman. I’m just another human trying to live life for the first time, just like everyone else.

Warrior!

Lover of life

Fighter. Warrior. I’m alive.

Testimony to His greatness

Wife, Mom, Daughter….I am so many things, but those are the most important to me.

Cancer fighter

Badass

Thriver!

Fighter

Warrior!

Thriver and living my best life!

I’m not just a survivor, I’m a (coming up blank here. I’m lots of things, but it’s hard to put in one sentence). All our life experiences shape us into the person we are today. Cancer has definitely shaped me as well, but I would say it’s mostly shaped me in positive ways. I can be thankful for my cancer because I survived it. I’m not sure I’d be so thankful if I were still fighting it or if I thought it was terminal. It’s been over 6 years since diagnosis, and I am thankful I went through it so I can have more zest for life and appreciation for living. I was excited to turn 40, because not everyone gets to that milestone! Now I’m coming up on 45 🙂

Woman who cares.

Bebe to three precious humans (soon to be four!)

I’m not just a survivor, I’m proof that God’s not finished.

Living testimony and a fighter until the end.

This week, we share another round of powerful testimonies. These reflections remind us that listening to our bodies is crucial, and that speaking up—no matter how small the symptoms seem—can make all the difference. Survivors also answered two new questions: “What advice would you give to someone newly diagnosed?” and “What’s something beautiful that’s come from your diagnosis?” Their words offer both wisdom and hope, shedding light on the courage it takes to face gynecologic cancer and the strength that can grow even in difficult seasons.

THIS WEEK, WE SHARE ANOTHER ROUND OF POWERFUL TESTIMONIES. THESE REFLECTIONS REMIND US THAT LISTENING TO OUR BODIES IS CRUCIAL, AND THAT SPEAKING UP—NO MATTER HOW SMALL THE SYMPTOMS SEEM—CAN MAKE ALL THE DIFFERENCE.

What advice would you give to someone newly diagnosed?

Stay off the internet, no Web MD because it’s always gonna look different for each person. Don’t scare yourself.

Stay positive. Attitude is everything. Ask questions. Advocate for yourself.

Learn as much as you can

If you don’t know where to go or who to see, go to a university teaching hospital or one that has an outstanding reputation for treating gynecological cancers. If you don’t know who to go to, go to the head of the gynecology department.

Don’t be afraid to ask for help, have a close bond with your doctors, and make them aware of any concerns. Never hesitate to ask questions.

Breathe. Make sure you have a good medical team.

Know that even if you are in the late stage, you can win this war!!!

Write down all the questions. Keep a journal. “Bother” your providers with all the questions. Accept help. Don’t be scared to say what you want. I was scared to say, Don’t bring me meals – send me food delivery gift cards because the kids are unique with their preferences in food. When I started saying things that I actually wanted and needed, people knew how to help me. I learned that people just don’t know how to help sometimes because they are also overwhelmed with the emotion of something being “wrong” with the person they care about.

Try not to stress. I know that is a hard thing. But I believe that staying calm is better for all of us. Let people help you and take care of you; it helps them to feel like they are contributing to your fight. Once I was diagnosed, I rarely drove anywhere; I was driven to all appointments, treatments, etc. I had friends who knew my chemo schedule and would bring lunch to me at the cancer center. Or they would bring dinner to my house on the days of my treatments. Accept gifts. Again, this helps those who care about you feel as if they are helping in your fight. And always carry an extra t-shirt to chemo, you never know when you will throw up.

Advocate for yourself, use a gyn onc, do what works for you. Rest

Don’t be afraid to ask for help (I’m still learning this myself). Use your support system (if you don’t have one, we Teal ladies would love to welcome you and be your support!!). Rest, take it easy. Oh, and EAT. Even if it’s something small like crackers, anything will help you heal and get a little bit of energy in you. Stay hydrated!!

Stay off the internet and WebMD! Too much scary information out there. Talk to your Oncologist and Surgeon, and keep a notebook of questions. And record all your appointments to listen back when you get home.

Talk to people. Try to find humor in a very disturbing reality. Cry often. Get the angst out of your body in any way that works for you. Ask a million questions. Take lots of deep breaths. Write. Cry again. Rest. Let people love you.

To take things a day at a time. I used to be someone who liked to control things. But this is something that can’t be controlled. Lean in to what your doctor says, ask questions, read up, and do what you feel right doing. If not, find a doctor you trust. Try to continue to live your life. Eat whole foods, get sleep, and regular exercise like walking. Let people be there for you if they offer. Cancer is a chronic disease that needs to be managed. There will be highs and lows.

It’s overwhelmingly hard, and there are days that you will want to give up, just remember that there is an ending to one of the hardest journeys you will ever have to go through.

Clean up your diet! Limit or eliminate all processed foods. Doctors will not tell you this, and the food in hospital cafeterias is shameful. Our bodies need whole, nutritious foods in order to heal. Also, eliminating environmental toxins (cleaning products, beauty products – all full of harmful chemicals) really can make a difference. Have a positive mindset – healing is possible, but you have to stay positive and believe.

Fight it head-on! No panicking! You can do it. You will be very surprised at what you can get through 😘

Don’t be afraid to reach out for help. It’s okay to cry, get mad. But don’t let it consume you. Live one day at a time.

Never give up! Try to stay as positive as you possibly can! Accept help with grace.

Don’t lose hope. We can do hard things. You will get through this. All the treatments are doable…not very fun, but you can do it. The hair loss is just a side effect; it will come back. Make the most of the days you feel good. Do the things that make you feel like you. Get outside and walk.

Fight like it’s your last fight. Educate yourself. Talk to others and connect to the Ovarian Cancer community. Don’t let any doctor tell you that you’re not feeling what your body is feeling. Getting an early diagnosis WILL SAVE YOUR LIFE.

Breathe. Take someone with you to your appointments who can take notes for you. Press for as much information from your treatment team as possible. Know your options. Get a second opinion. Keep moving as much as you can, especially during treatment. Connect with other gynecological cancer survivors. Try not to Google…you are not a statistic. Let the people who love you help you. Remember that you are not alone. And know that people do survive this crap.

I would tell them, take a deep breath, lean into your faith, and remember you’re stronger than you feel. Learn everything you can, ask every question, and use wisdom in all things related to treatments and outcomes. Many will have opinions, but find an oncologist you trust who will fight with you. Surround yourself with people who lift you up, and don’t let cancer run your life; it already steals so much. Keep living and loving, because there is joy even in the pain, and God still gives beauty for ashes.

You have to let yourself go to those deep, dark places because it is cathartic. However, you can’t LIVE there. Find your joy in every day. It may only be that hot cup of coffee in the morning, but it is there to be found.

Find a support group of women who have the same or a very similar diagnosis, either in person or online. You can benefit from their stories and their support as they know what it is like to be in your shoes.

“Never give up, no matter how hard things are looking for you. While there is life, there is hope. Never let cancer define who you are or take control of your mind. It’s always good to cry, and don’t let others (those who have not experienced cancer) minimize your feelings. You don’t have to go through this alone; there’s plenty of support out there.”

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What’s something beautiful that’s come from your diagnosis?

Community

Connecting with other women and meeting new ones who are fighting as well. The lifting up of other women and being lifted up by them is extraordinary.

It has given me a purpose in life – To give hope and encouragement to my fellow ovarian sisters.

The bond between others with a similar diagnosis.

I have started my life over, leaving an emotionally abusive relationship, and found an incredibly supportive spouse.

Treasure the days, the moments, and make memories!!!

Appreciating things every day. Appreciating breathing the air outside.

I am now closer to God. And the bond with my family and friends is a lot stronger. I was always one of those “I can do it myself” women. Now, I know that I don’t have to do it by myself; I have learned to ask for help and let others contribute.

I’ve made some wonderful friends and learned to play mahjong with a group of survivors.

I don’t know if you would consider this beautiful, but a NEW ME. I’m a different person than I was before. I’m still trying to figure out who that is and what my new normal is. Even though I don’t like change, the biggest change is me.

My increased faith in Jesus Christ

My relationship with God has grown….I now KNOW that He has his hand in everything if I let it….

“I have made great friendships with a couple of women that I met at cancer support groups. We encourage each other. I appreciate life so much more. I love being outside, my family, friends, etc., so many blessings. I am deepening my relationship with God. I desire to know Him more and beg for help in my time of trouble.”

My family and I are much closer than we were before my diagnosis.

Two of my daughters are in nursing school, and I think seeing what I have gone through may have played a part in that. My extended family has heard me give God the glory, and I have developed a closer relationship with a distant cousin.

Appreciate your loved ones and get to share stories with other survivors.

A better appreciation for those struggling with cancer and what they are going through.

My opportunities to educate others about OC and to advocate for an accurate early screener test.

“Cancer survivors have a unique perspective on life that others aren’t necessarily given. We know to be grateful and thankful. Each day is not guaranteed. Also, I have better empathy and compassion for my patients who are also undergoing surgery and chemotherapy.”

The best years of my life will always be joining the OCRA. To be able to share and listen is one of the greatest gifts I have experienced. So many of my sisters are gone. I wish I had known more and given more to save them. I will continue to advocate until my last hot flash.

I have a much stronger faith in God and have learned not to rely on myself alone. I appreciate the moments, work less, and spend more time with those I love. I am grateful. I appreciate the little things.

Something beautiful that’s come from my diagnosis is realizing that, even though my body has grown weaker, I’ve become stronger in the ways that matter most. I’m more in tune with my body, knowing what it needs and honoring those needs. I no longer waste energy on the small things. In the end, what matters is how well you love and encourage others, because sometimes people will watch your journey and be inspired in ways you may never know.

I have made incredible friends from all over the world. The teal sisterhood is an amazing community. The support of friends has meant the world to me.

Getting to know my “Teal Sisters” and learning their stories. It gives me hope that I can not only make it through my chemotherapy treatments, but also hope for remission with no recurrence.

A reminder that I am loved and that I have support from many people; reassurance that God gave me the best and caring husband and family; and knowing that God is always with me because He keeps me going. It’s also beautiful to be a testimony of God’s grace.

What’s something beautiful that’s come from your diagnosis

As this series unfolds in week three, more survivor voices join the chorus, each adding a layer of depth to the question of how they first knew something was wrong. Their experiences remind us that no two journeys are the same, yet each one deserves attention. 

AS OUR SERIES CONTINUES, EVEN MORE SURVIVORS ADD THEIR VOICES TO THE QUESTION OF WHEN THEY FIRST REALIZED SOMETHING WAS WRONG. THEIR EXPERIENCES SHOW THAT SYMPTOMS CAN LOOK DIFFERENT FOR EVERYONE—BUT THAT EACH STORY MATTERS AND DESERVES ATTENTION.

“Is there a part of your story that you’re still learning how to tell?” 

I’m pretty open about it; it’s been 19 years. I can’t say it was always the case, but I used to hate my horizontal scar, and I bought one-piece bathing suits because of it at first. 

I haven’t told many people about what I’ve been going through. I don’t want a slew of people who don’t normally keep in contact to feel sorry for me or reach out only because they’ve heard I had cancer. I never want a pity party. 

One of my high school classmates and choir mates in Illinois was going through the same symptoms as I was at the same time. We were diagnosed and had surgery at the same time. Lynn Johnson Holden passed away two years later in 2012, at the age of 45. She was always the life of the party, and I was super shy. I have flipped my personality around to find that joy in the world that she had. Still feel survivor’s guilt that she is gone, and I am here. 

Not really, I’m an open book.  

Saying the word Cancer is still hard for me. Even the reality of what happened to me is sometimes difficult to grasp. Having to continue to be seen by doctors and being OK with that is hard. I now have white coat syndrome, where my BP gets high when I go to any doctor.  

No. I am pretty comfortable telling my story. I hope that my story can help other women who are fighting this beast. 

How it will end. I think about this a lot. 

Not sure. Maybe processing the whole thing. I don’t think I ever fully processed having cancer. I just went with the flow and did/do what I needed to do to survive another day.  

I try not to think about it.  I’m so grateful to still be here with my family. ♡ 

My experience with this roller coaster ride that I was on, trying to explain all the emotions that were and are still going on.  

Absolutely.  People who have not been through cancer cannot fathom the effect it has. Some people think I’m silly for not eating certain things, but I know that there’s a purpose in supporting my body in what it needs.  I still have many chapters left to discover for myself!  

Sometimes I struggle to find the words to explain the worry of having a recurrence. 

I’m pretty much an open book. 

Yes. I have evolved over the past years. I now know that speaking out, telling my story, and realizing that every ache and pain, every search for a doctor to help me, is related to my ovarian cancer. Having them listen while I relay my concerns gets old after a while, but I am motivated to live what time I have as best I can with quality. 

I still have a difficult time sharing the fear and anger I experienced.  When the bombshell of the diagnosis ripped my life apart, I struggled to get a handle on it… to move forward.   I refused to tell people and did not want anyone outside of my inner circle to know I was sick.  I was afraid to die and miss out on my children’s weddings and grandchildren… my future. It took a long time for me to regain my footing, deal with the cancer, and live my life.    

I’m still learning how to tell the part of my story about surviving when so many women I met along the way didn’t. Survivor’s guilt is real, and for a long time, it kept me quiet. But I know my voice matters, not just to warn others and push for earlier detection, but to help drive research so that my daughter and granddaughter will never have to face this disease. 

I will continue to write my story every day. I stopped working last year. So far, that has been the hardest part for me. I am still trying to figure out what my new normal is. 

It is still challenging for me to allow people who don’t know me well to know how serious ovarian cancer is.  I tend to want to minimize my experience, and at the same time, I know how frightening it is. 

I am only about 5 months out from my diagnosis. I am still learning that I am a survivor, even though I am still in chemotherapy and learning about my genetic link (BRCA2 gene).  

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“What does survivorship mean to you today?” 

Advocacy  

It means I can still fight.  It means I can help others who are on the same journey. It means I can still live a life even though it wasn’t the one I planned on. 

They say you are a survivor from the day you are diagnosed. 

I am thankful for the people who helped me through this journey. 

I am 75 years old, and life has been good.  Something good comes out of every journey, no matter how difficult it may be.  Maybe in some way, I can be a light to others who may be facing the same journey 

Taking a second chance and running with it. 

Family, my husband, my children, my grandchildren… watching them grow and thrive!!! 

Being able to do the hard things. It’s hard to even say that I’m a survivor because you live this every day. You fear the slightest feeling of how you felt before. But it also means love. It means that I have amazing people around me.  

Another chance. A chance to be a better person. A chance to be more compassionate.  

Living my life, but resting when needed 

Another chance at life. Being alive. Being able to spend more time with family! 

Being a survivor to me means not dying from my illness. Living longer than what the statistics say.  

Everything.  EVERY.  THING.  How do I even begin to put that into words?   

That I can keep on living even if the cancer is just kept at bay. It means thriving despite it being there. 

I know that it means something different for everyone, but my experience is that even though I am cancer-free, my new chapter or new journey is just starting, trying to get back to “normal” after cancer.  

Being able to see my grandchildren grow.  Being here to support all my children in their lives as they reach adulthood and beyond. 

I should appreciate living every day. I am still here 

Living each day to the fullest, loving people, and trusting God. 

I am NED and thriving and FINALLY enjoying my retirement after 33 years in education. 

Living my best life and being the healthiest version of me that I have the willpower to be. 

I did it, I survived. It is like being tossed in the ocean, not knowing how to swim, and landing up on the beach by the grace of God. 

Survivorship means spreading awareness of the signs and symptoms of ovarian cancer.  It means being a voice for all the women who no longer have a voice.  It means being available and present for other ovarian cancer survivors who may need support or just someone to listen… who understands.   

Survivorship to me means more than just living; it’s living fully, with purpose and gratitude. Facing cancer hasn’t diminished my life; it’s enhanced it in ways you can’t understand unless you’ve walked this closely with mortality. The truth is, something is always trying to take us out; the only difference is, medically, I know what’s trying to kill me right now. You don’t have to be afraid of cancer. It’s not always a death sentence, and it doesn’t have to steal your joy or your purpose. 

Survivorship means living and doing as much as I can. 

Gratitude!  Even though I don’t have much family, I’ve never been without the support I needed.  

Survivorship is not giving up, not letting hardships control your life or define you.  Survivorship is fighting the battle until the end, no matter the outcome.  Survivorship is showing your best in the worst times. Survivorship is having a scar in your body, losing your hair, doing chemo, dealing with side effects, etc. Survivorship is dealing with uncertainty and the unknown.  

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For the second week of our September survivor blog series, we continue sharing voices that remind us of the power of lived experience. Survivors responded to thoughtful questions about their journeys—what they’ve faced, what they’ve learned, and how they’ve been supported along the way.

This week’s reflections reveal both the difficult and the hopeful moments, painting a fuller picture of what survivorship can look like and how community care makes a difference.

In our first post, survivors began sharing how they recognized the earliest signs that something wasn’t right. Their words carried weight and honesty. This week, we continue that conversation, highlighting more perspectives so each story has room to be heard.

How has your life changed since your diagnosis—physically, emotionally, or spiritually? 

“I try not to take the days for granted or the years. I’ve known so many women who have gone too soon from this. 
 
“I am physically exhausted as I’ve been in some form of treatment for nearly 4 years.  I get Taxol and Avastin every other week now, after having had it three weeks on and one off for the first 5 months. I was once an active person, and now I can’t do the things I used to. Emotionally – It’s up and down.  Been a roller coaster ride.  After each scan or blood test, I am either relieved or concerned.  Spiritually, I try to remain focused on hope.” 
 
“Well, I’ve had major surgery!” 
 
“I am a 38-year survivor of IIIc ovarian cancer. For the past 26 years, my mission has been to give HOPE to others going through what I have experienced. I had 2 big surgeries and 2 1/2 years of chemotherapy. I was 41 years old at diagnosis, and I am now 80, and I feel great 😊.” 
 
“I was already a spiritual person.  I think what changed with me was emotionally.  I don’t dwell on the small things and just accept people as they are.   Everyone has a different perspective on life.  We have to respect others’ outlook, though it may be different from ours.  
I have not changed much physically.   
Lost my hair, but have not lost weight or appetite.” 
 
“Took on a carpe diem attitude, because we never know.” 
 
“I suffered through anxiety, depression, and gambling addiction. I spent money I didn’t have because I thought I was given a terminal diagnosis. I felt lonely even with support all around me. The journey was painful and difficult, but I “hoped” I could be that one who would get through it. I did a clinical trial that was deemed a failure, but it worked for me. I’m still paying the debt I accumulated while heading down a dark hole. My hope is that people will come to know it’s not a life sentence!!! You can survive this beast!!!” 
 
“I’m more emotionally and physically aware. I feel things strongly and deeply. I listen to my body. I will sit my behind down and rest if my body tells me to.” 
 
“Spiritually, my life changed for the better. The day I received the diagnosis, I sat in my car and prayed, “Dear Lord, if this is the journey you want me to take, I will, but I need you to carry me.” I suddenly was covered in peace and never cried about it again. Emotionally, I have learned to let those I love know that I love them. Before the words, I love you,” I mostly spoke to my family. Now, I tell everyone, “I love you.” On the other side of the coin, I panic with every little cramp or twinge in my abdomen. I think, “Is the beast back?” 
Physically – The change in my body physically has been difficult (of course, I am now 60). I was always an athlete. Now, I do well to walk around my yard. I tire out more easily. I have to rest more. I just do not have the same energy that I had before cancer.” 
 
“It has decreased my stamina and balance. I’m no longer work-driven and retired early. I am thankful for every day I’ve got. Traveling more, enjoying life/kids/family more” 
 
“I’ve always had self-esteem issues, and now I think it’s worse. I’ve got a bald head (thankfully, now my hair is slowly coming back in), and scars on my stomach from 2 surgeries I had to have. I was ok with my body before, but now it’s marked up and not easy to hide. I see a lot of ladies embracing a bald head, but that’s not me. I still wear a hat when going outside in public. I had a meltdown when I told my husband I wanted him to shave my head. I absolutely HATE change, and this was an extreme change for me, and everything happened so fast. Trying to grow closer to God, but it’s hard. Never had a good relationship to start with. I always say Why me. Life was good, and then you want to go and throw this huge curveball at us. We made it, but it wasn’t easy. There are still days when I cry. Whether it’s from being tired or having no energy to do anything. It’s still hard even after treatment. Nothing will ever be “normal” again, and it hurts. I don’t think I grieved my old self. If anything, I want my old self back, but I know it’ll never come. I have to adjust to a new normal, and I haven’t figured that out yet. Day-to-day life after treatment, even during treatment, is just that…day to day. You survive daily, focusing on one day at a time.” 
 
“I’m more tired and miss the energy I used to have. My faith has grown, and my relationship with God is stronger. I know He is my strength and healer. But I’m still emotionally shaky sometimes. I have good days and bad days with too much thinking, projecting, and worrying.” 
 
“Of course!  Physically, I try to pay more attention to my body.  Emotionally?  I am much more emotional.  Spiritually?  God was there and still is.  I felt him in a very tangible way a few times.” 
 
“I get quite emotional. I never know when I might start crying. I am scared a lot. It is harder to walk. I get muscle spasms with pain and shortness of breath. My ribs and abdomen hurt at times. I pray more often. I ask God to heal me, and I don’t understand why I still have cancer. It is a rollercoaster of emotions. I am still trying to hold on. I can’t drive currently or do things I used to physically do anymore.” 
 
“Realizing that you are here on this planet for only a short period of time and do not take any of that time for granted, because it can be over in a second.” 
 
“I am much more aware of the need for healthy eating, daily exercise, the impact of environmental toxins, etc. Our bodies were designed to heal, and if we give them the right tools, healing is possible.   Emotionally, I think I am much stronger.  I can handle a lot when needed.  Spiritually, I think I am much more aware of God in my day-to-day life and His concern for all the details.” 
 
“I realize that I was very lucky. I could have been diagnosed at a later stage. Thank god for that. Physically, the chemo and other meds have aged me a bit. Slowed me down some. But I am doing fine.” 
 
“My mindset is different about life. Don’t take it for granted. Enjoy life. I feel I have gotten closer to God through this journey.” 
 
“I was VERY uncharacteristically emotional after my diagnosis and debulking surgery for several months.  My sister, who is a psychologist, recommended I talk to someone.  I went to a local OC support group and found MY people.  I have become an advocate and educator regarding ovarian cancer.  I also work with the Turban Project to sew headwear for newly diagnosed ladies of all of the gynecological cancers to go in bags of hope (containing educational materials, support opportunities, and goodies for treatment).” 
 
“Physically, I am more health-focused. I was before, too, but am more so now. I eat better, more focused on protein, less sugar, less processed foods, less pesticides, and herbicides. Emotionally, I am more thankful, and I prioritize time with family and friends and doing things I enjoy. I’ve cut back at work. I want to make many memories, and I realize how short life can be. Spiritually, I am strengthened. I felt God carrying me through this difficult journey, and I trust He will give strength for all the difficult things in life.” 
 
“At 70, almost 71, I am still fighting the much-ignored symptoms of a complete hysterectomy. Never sleeping through the night, low libido,  changes in eyesight, heart palpitations; I could go on and on. Emotional changes and still a feeling of youth lost. You can be grateful to be alive, but the symptoms sometimes bring you to your knees. People want you to be grateful to be alive; they don’t understand the mental and physical changes cancer brings.” 
 
“Physically, I am still dealing with the effects of the hysterectomy and the sudden hormonal changes. I have lingering neuropathy in my hands.  I had a quadruple bypass four years after completing treatment due to premature clogging of my arteries… a rare side effect of chemo.  I exercise, but I am slower and not as strong.  Emotionally, even seven years post-diagnosis, the possibility of recurrence haunts me.” 
 
“Since my diagnosis, life has changed in every way. Physically, I’ve had to face my limits and listen to my body. Emotionally, I’ve learned to release what doesn’t matter and hold tight to what does. Spiritually, my faith has deepened. I trust God more fully now, knowing He’s been faithful through every battle and every breath.” 
 
“Physically, I am not the person I was. Thirteen surgeries and 10 years of constant treatment take a toll. Emotionally, I have learned a lot. No is a complete sentence. Peace and joy are priceless. I have always been a very spiritual person. I have more conversations with God now, versus only praying to God.” 
 
“It’s hard to say…   I had several years NED where there was minimal impact.  However, I’ve been in constant treatment for the past 18 months, and I’ll admit it’s tiring at times.” 
 
“Spiritually, I learned to depend on the Lord to make it through each day, as I am unable to walk through my cancer journey without His help.  Before my diagnosis, I tended to depend on my own abilities and not as much on the Lord.” 
 
“Ufff!  It is life-changing….feeling the uncertainty of what will happen. Having to be dependent on others is difficult for me, but I have learned to go with the flow. I enjoy my life, and having some physical limitations (like tiredness, fatigue, pain, etc) can be challenging. I try to keep a positive attitude and be active (within the things I can do now), doing everyday normal tasks, but even though I try to keep strong, fear tries to play tricks, and I cannot let it take over. Spiritually, it has increased my faith; God’s will is perfect, and I have no control over this. I do my best not to question God and just let Him work on the purpose of my journey.” 

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What helped you get through your hardest days? 

“Community” 

“Sleep, breathing, and talking to my friend.” 

“One step at a time. One chore at a time, walk as much as I can.” 

“Taking it a day at a time. Having long-term and short-term goals. The short-term goal was counting down to the treatments. My long-term goal was to get my younger son through school. If I couldn’t get him to do his homework, I would do it, so I wouldn’t worry. He was finishing 3rd grade when I was diagnosed. He is now 47 and a very successful businessman. So grateful I have lived to see this.” 

“Knowing that whatever happens, I will be okay.  Life does not end when we leave this earth. We just changed location.” 

“Being there for my five kids, who were nineteen through ten at the time, and had no idea I was going through anything.” 

“I tried to take my worries and give them over to God.” 

“The people around me and my daughters. Even when my peers were scared for me, too – they never showed it to me. They were very encouraging and positive. They helped where I needed it. They took care of my daughters for me when I was in the hospital. I learned that while yes, I can do things alone, I don’t have to.” 

“PRAYER & FAITH IN GOD. At a couple of my chemo treatments, I could actually feel people praying for me. It was very humbling. And through every treatment and procedure, I was at peace.” 

“Sleep, antidepressants, good talks with friends, journaling, art” 

“My husband. During treatment, he would tell me ‘thank you’ every night before bed. Thank you for giving him another day. Thank you for fighting. He still tells me he’s proud of me when I accomplish things (same things I used to do before cancer, just now they take longer to do). He’s my rock.” 

“Reaching out to my church family and reading my Bible.” 

“Focusing inward, prayer, crying, talking to anyone who would listen, and my husband, who held me tight and let me sob.” 

“Pain medicine. Crying. Talking to a friend. Distraction by getting outside in nature. Prayer. Sleep.” 

“Knowing that what was happening to me, meaning side effects from chemo, etc., was temporary and was going to make me better. Some days it was harder to believe than others.” 

“My youngest 3 daughters (I have 5!) were 12, 11, and 5 when I was diagnosed.  I knew that I needed to live for their sakes.  The older two are now in nursing school, and my youngest is 12, and we’re doing great!  Also, my 2 boys who had their own families – the joy of grandchildren is a great healer!” 

“Talking about the cancer. Family and friends.” 

“My faith and family.” 

“Friends, family, and teal sisters visiting and texting and video calling.” 

“My faith, and also my family. My nieces and nephews were a great distraction.” 

“I am a strong cookie. Being part of the OCRA, volunteer work,  getting the word out, and speaking up have helped me to realize that I am not alone and I must share what I have learned. I am a dinosaur in the ovarian world.” 

“My husband, my kids, rest, prayer, and Kraft macaroni and cheese!” 

“What got me through my hardest days was leaning on God’s promises, my husband’s steady love, and the prayers of friends and family. Even when I felt weak, their strength and faith reminded me I wasn’t fighting alone.” 

“My husband has been my rock, never leaving my side. We laugh, cry, and continue to enjoy life together. With chemo, knowing when I was to finish treatment helped. I can do anything for a limited amount of time when I know when the end is.” 

“Faith is at the bedrock of my existence.  I’m tremendously grateful for my foundation in faith.” 

“Notes of encouragement or prayers written out in the comments of my posts on CaringBridge and Facebook. Also, becoming part of the Ovarian Cancer Christian Fellowship group and reading the Daily “Feels” and News posts.” 

“Believing in God and family support. Also keeping up with a positive mental attitude – “One day at a time”. “Things will get better”. “If I have overcome previous situations and God has helped me through it, it can happen again”. 

This September, we’re highlighting survivor voices through a special blog series. Through shared questions, survivors opened up about what led to their diagnosis and what survivorship looks like for them today. Some responses reflect on the first signs and symptoms that signaled something was wrong, while others focus on life after cancer—the challenges, the growth, and the hope that carries them forward.

Each week, we’ll feature a selection of these answers, offering an honest glimpse into the journey of survivorship and the strength found in community.

We started by asking survivors how they first knew something wasn’t right, and their responses were powerful. To give each voice space, we’ve divided this question into four parts and will share different answers each week.

What’s one thing you wish more people understood about your gynecologic cancer?

“Age doesn’t matter, family history doesn’t matter.”

“It is not curable. It is an ongoing battle. That even if you look well, treatment will take a toll physically, and I live with the knowledge that any day, at any time, treatment may stop working.”

“How subtle the symptoms are.”

“Look at your family history. If you think you might have inherited your cancer from your mother or your father’s side of the family, get genetic testing. If you test positive, then tell all your relatives on that side of the family to get tested. If they test positive, then they are at high risk. They can then get screened to catch cancer early. Women can get their tubes and ovaries removed to avoid ovarian cancer.”

“I faithfully have a gynecological check-up. I did not realize that ovarian cancer is not detected through Pap smears. Also, CA125 is not a clear indicator of ovarian cancer. My CA125 was 19. Which is within the normal limit, which is anything under 35”

“A cancer diagnosis doesn’t necessarily mean chemo and radiation; it possibly is contained and will hopefully all be removed. It may possibly pop back up if not. I was told that if I had waited any longer, it would have been a worse situation. I was lucky.”

“There is HOPE!!!”

“It’s not always “obvious.” The symptoms associated with it are pretty routine with women, and we are taught as women to “take it.” We brush off a lot of symptoms when we should be paying attention.”

“I wish that more people understood that losing your female organs affects how you see yourself as a woman. I struggled with the thought that I am not a complete woman now. Losing my female organs and my hair was very emotional. I think that was the worst part.”

“You can inherit mutations from either parent, not just the mother.”

“That it’s cancer. Yes, every cancer has a different name- breast, ovarian, lung, etc. That doesn’t make it any different, just because it’s in a different area of your body. I hear a lot, “it’s the good cancer”. No cancer is good PERIOD. People need to understand, cancer is cancer. It’s serious and should be treated as such.”

“There is NO test to detect ovarian cancer. Women need to know AND understand the signs and symptoms. Better education!”

“If something doesn’t feel right in your body, go get checked.”

“That I am scared. It is important for people to think before they speak to me. They need to be sensitive to how what they say might affect me.”

“Wish that there were better ways to diagnose gynecologic cancer because when I was diagnosed, I was Stage 3 already.”

“Symptoms can be nonexistent or extremely vague. Accurately diagnosing these cancers is often really dependent on a physician listening to a patient and being a keen investigator, and knowing the current standard of care.”

“The symptoms are very subtle and easy to overlook or justify.”

“Doctors need to recognize the symptoms, however vague. Listen carefully to what your patient is saying.”

“How sneaky they are. It is so hard to diagnose because they present with common symptoms and tend to get ignored.”

“Ovarian cancer does NOT have an accurate screener to detect early development.”

“I think some people mistakenly think that they somehow did something wrong to get cancer, but this is not really true. Sure, our health habits have consequences, but God is not deciding to give some people cancer because they did something bad and deserve it. The rain falls on the just and unjust, and He carries us through all the things that we go through in this life.”

“You MUST be your own advocate. You MUST listen to your body. And after you survive, you MUST seek medical attention for the rest of your life to combat the symptoms of living without estrogen. Quality can return to your life, but only if you realize how the depletion of estrogen will affect you.”

“I wish more people understood that the physical and mental ramifications of being diagnosed and treated for my cancer did not end the day that I was told I was NED.”

“I wish more people understood that gynecologic cancers don’t always scream for attention; they whisper. You have to know your body, trust your instincts, and push for answers, because early detection can make all the difference.”

“It is possible to live a full life with chronic, metastatic disease. I may not be able to do everything that I used to, but everything I do is with a joyful and grateful heart.”

“There are a variety of types, and a PAP test only detects cervical cancer.”

“The way the symptoms can be passed off as “normal” even by the patient. In my case, I passed off occasional sharp pelvic pain as normal cramping. I didn’t mention it to my husband or a doctor until the pain continued for almost 15 hours.”

“Unfortunately, this cancer does not show many symptoms until later stages, and it is not diagnosed with a PapSmear, and symptoms can go unnoticed. There is no routine exam for ovarian cancer.”

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Describe the moment you felt most supported during your cancer journey?

“My parents came to all my Chemotherapy treatments.”

“When 3 of my friends were diagnosed with different cancers within a couple of months of me. They provided so much emotional support. One is clear, one is in remission, and one is still fighting like I am. She and I talk every couple of weeks and share so much information and support one another consistently.”

“I have a great medical team. They are always available.”

“My husband, mother, and brother helped give me courage from the very beginning.”

“My gynecologist immediately started tests in his office. He referred me to a Gyno/Oncologist and called her while I was in his office during that initial visit. There was no delay in getting the care I needed. Also have a strong support system through my family, church, and friends. I definitely am not in this journey alone.”

“I went through this in 2009-2010, but when Teal Diva had their first 5k in Mooresville in May 2014, I suddenly discovered support that I didn’t know existed.”

“I joined a support group for Ovarian Cancer patients, and the support was amazing!!!”

“My employer never made me feel like I’d lose my job because of all the hospital stays and surgeries. My job also understood my need to work and not be out of work for too long because I needed to keep my mind busy with something other than my illness.”

“Once my hair started coming out, I had a dear friend who is a hairstylist buzz my head. When I made the appointment, my three daughters secretly planned a Hat & Cap shower for me. They invited all of my dear friends, had food, cake, and punch (like a baby/bridal shower), and the guests all brought different types of hats, caps, and cancer head covers. The invitations said, “Let’s support Kimberly in her cancer fight and help her maintain her Diva style!” I had bunches of head covers. It was actually fun. I tried on each hat I received and took a picture with the friend who gave it to me. We ate, laughed, cried, and prayed together. I knew at that moment that I had an awesome tribe supporting me in my battle.”

“When my family came to appointments and infusions.”

“My husband has never left my side during this whole journey. He even goes to my follow-ups for maintenance now. He took off work every treatment for a week to take care of me. He’s got a great job. His whole work was constantly checking in and praying for me. I had a lot of people on my side praying for me, and I don’t think I realized that.”

“The first is when I met my surgeon. He took his time explaining my tests and the type of surgery he would perform. He answered all my questions. The second is when I joined the NOCC Facebook group!”

“That’s a hard question. I had tremendous support from my family and my medical team.”

“Being around other women with ovarian cancer is helpful. They understand. Also, I have felt love from friends who have left notes or gift cards for food, check on me, and pray for me. When people tell me that they are there for me..When my husband or children go with me to doctor’s appointments or chemo, I feel supported. When people help with physical things such as yardwork or house cleaning, it has been amazing support.”

“The entire process, my family and very close family friends were making sure that they were here for me and supporting me through this journey.”

“My oldest daughter and her fiancé stayed with me at the ER until 2 am, when they finally brought me to a room. My 2nd daughter and her husband worked with the Red Cross to get him emergency leave from the army to come and be with me after my surgery. My mom, who had her own health problems, sat with me in the hospital throughout my recovery.”

“When I realized I had a good team of doctors treating me.”

“From the very beginning.”

“My husband and son have been troopers and took excellent care of me while working 40+ hour a week jobs.”

“It was not one moment, but all the moments. Friends & co-workers sent cards and flowers, many people said prayers, and I received many supportive messages on Facebook. Even my doctor sent me a very nice card.”

“I never felt supported until I read ‘It’s Always Something, by Gilda Radner.’ Gilda had passed away from Ovarian cancer just before my diagnosis. If not for her, I probably would not be here today, 35 years later.”

“I felt the most connected and supported during the OBX Teal Diva Retreat. I am blessed with a wonderful, supportive husband, family, and close friends who have been by my side through my cancer journey. However, the retreat was the first time that I was able to connect with folks who really understood what I was experiencing.”

“The moment I felt most supported was seeing my husband’s unwavering patience and love, even while I knew he was carrying his own fears. He stayed steady, strong, and present, holding me up on the hard days, making me laugh when I wanted to cry, and showing me through his actions that we were in this fight together.”

“Finding the right support groups and becoming active as an advocate for ovarian cancer has given me hope and strength. I am thankful for the support of women who understand what I go through and blessed to do the same for other women.”

“As difficult as it was to tell people, without exception, I felt tremendous support. So grateful to friends, family, and my church who have consistently stepped up to be there for me.”

“When I saw how many people were praying for me and left notes of encouragement either on my CaringBridge page or my Facebook page, including people that I had not seen in person since our high school graduation.”

“I am so blessed and have to be grateful for all around me, family/friends/brothers, and sisters in Christ, because I have been supported since day one. My family has been by my side every step on this journey, caring for me and helping with everything (even with a personal chauffeur lol, my mom, because she does not want me driving during chemo!). I have an army praying for me, I had people bringing meals/cooking for me, showered with messages/calls, visits, gifts (items to use during this journey), etc.”

We’re grateful to every survivor who opened up with us; your voices bring strength to our community. We’ll continue sharing more survivor voices in next week’s post. Be sure to check back and follow along as this series unfolds throughout September.

I was an exercise enthusiast my whole life. Taught group fitness since my Sophomore year of college. I majored in Health Education and was supposed to be a teacher, but that didn’t work out. I continued to teach group fitness classes for years.  

After having 4 children, I had a small bump outside of my right vulva for years. My ob-gyn said it was just a fatty mass and nothing to be worried about.  

In the spring of 2018, I was having work done on my varicose veins and asked the nurse to scan my lump- at first she said no, but I asked again.  Since I was on valium that day due to vein surgery, there wasn’t anything to do.  The following week, at my post-surgery vein check-up, I asked the nurse to scan me again because out of the blue, that small lump had grown.  She scanned me and said nothing. She contacted the vein surgeon and told me the office would contact me about a scan I would need.  

I was sent for a CT scan 2 days later, and 20 minutes after my scan, they called and said I have a 9.5 x 11 cm mass on my ovaries, and I was being referred to Levine’s Cancer Center to see Dr. Miller. The nurse had found my mass but couldn’t say anything to me- she was a lifesaver!! 

Within 4 weeks, I was scheduled for surgery. 4.5 hours after surgery, I awoke to my dad coming to my bedside to let me know I had ovarian cancer.  I picked up the bed sheets and looked at my belly, which was taped from the top of my vagina up past my belly button.  My mass had grown to the size of a cantaloupe! I had the mass removed along with a full hysterectomy, left lymph nodes, appendix, and all the fatty tissue underneath my lungs. I had life-saving surgery.  

It took me about 2 weeks to walk up and down the steps and walk down the street. Being so active previously, I knew it was important to get my body moving. 

Within six weeks, I was back on my yoga mat and at the gym, although I took things very slowly.   

Every day I look at my scar and remind myself how far I have come, how strong I am, and how I can continue to share my story.  

I start my day at 5 am, and by 6, I am working out at Burn Boot Camp.  Even though I work a full-time job, I make it to my yoga mat most days at 4:30 pm. Affirmation journaling was also a big part of my recovery journey.   

I am thankful every day I have, Lynn

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No matter where you are on your wellness journey—just getting started or already in full stride—now is the perfect time to take that next step. It could be as simple as a stroll around the block or as ambitious as logging daily miles with purpose.

We invite you to be part of Mile for Her, our September virtual challenge. Walk, run, or roll at your own pace while helping raise awareness for women like Mai Linh, who continue to fight every day.

Every mile matters. Every step makes a difference. Start your Mile for Her today.