Useful Sites and Info I Wish I Had When I Was First Diagnosed and Beyond
Social Security Disability: Ovarian Cancer is on the list of conditions that qualifies for expedited SSD approval (in as little as 2 weeks) under a program called Compassionate Allowances.
Familial Ovarian Cancer Registry: The Familial Ovarian Cancer Registry’s primary goal and purpose is to maintain the world’s largest source of genetic data and family history profiles for research of familial ovarian cancer.
The goal is to provide top research teams across the globe with accesses to critical resources in order to find better methods for detecting, treating, curing, and eventually preventing familial ovarian cancer.
Long-Term Survivor Study: If you are a 8 year or more stage III or stage IV ovarian cancer survivor, your participation can help to improve the treatment, survival, and survivorship of all women.
MyLifeLine: Join MyLifeLine, a service of the Cancer Support Community, to easily connect with friends and family to regain control and receive social, emotional, and practical support throughout your cancer journey.
4th Angel: 4th Angel is an innovative, interactive approach to cancer care in which newly diagnosed patients or caregivers are matched with trained volunteers. While emphasizing one-on-one contact, people are matched with mentors of similar age and cancer experiences to best empower caregivers and patients with knowledge, awareness, hope … and a helping hand.
Resources, Grants, Financial Help:
The SamFund: Support to young adults who are struggling financially because of cancer. http://www.thesamfund.org/get-help/grants/
A ton of other resources can be found here:
Cancer Financial Assistance Coalition: https://www.cancerfac.org/
NormaLeah Ovarian Cancer Initiative: http://normaleah.org/Survivor-Support/Support.aspx
Be the Difference Foundation: https://www.bethedifferencefoundation.org/
MedGift: Fundraising platform for your medical bills https://www.medgift.com/
NeedyMeds: Helps with the cost of medicine https://www.needymeds.org/copay_diseases.taf?_function=summary&disease_eng=Ovarian%20Cancer
Patient Advocate Foundation: https://www.patientadvocate.org/
Cleaning for a Reason: One free house cleaning to women undergoing treatment for any cancer http://cleaningforareason.org/
Ovarian Cancer Co-Payment Assistance (Medicare Patients Only): https://www.healthwellfoundation.org/fund/ovarian-cancer-medicare-access/
Patient Assistance Network (PAN): https://panfoundation.org/index.php/en/
The Clarity Foundation: https://www.clearityfoundation.org/information-and-support/
Free Air Travel for Treatment:
Turning the Tide Ovarian Retreat: https://www.turningthetideovarianretreat.com/
Camp Bravehearts: https://www.braveheartscamp.org/
Camp Good Days: https://www.campgooddays.org/adult-oncology-programs
Camp Mak-A-Dream: https://www.campdream.org/camps-programs/adult-retreats/
Creative Healing Connections: https://www.creativehealingconnections.org/retreats
Mending in the Mountains: https://cancersupportmontana.org/programs-events/activities/mending-in-the-mountains/
Women Beyond Cancer: http://www.womenbeyondcancer.org/retreat.html
Dear Jack Foundation: http://www.dearjackfoundation.org/programs/
First Descents: https://firstdescents.org/
Kokolulu Farm and Cancer Retreat: https://www.cancer-retreats.org/
Wind River: https://www.windriverservices.org/
MANY MORE LISTED HERE:
Wigs & Wishes: https://www.wigsandwishes.org/
Lolly's Locks: https://lollyslocks.org/
American Cancer Society: Your local ACS location will have a free wig closet
EBeauty Community: https://www.ebeauty.com/