Useful Sites and Info I Wish I Had When I Was First Diagnosed and Beyond

October 15, 2018

 

 Social Security Disability: Ovarian Cancer is on the list of conditions that qualifies for expedited SSD approval (in as little as 2 weeks) under a program called Compassionate Allowances.

 

Familial Ovarian Cancer Registry: The Familial Ovarian Cancer Registry’s primary goal and purpose is to maintain the world’s largest source of genetic data and family history profiles for research of familial ovarian cancer.

The goal is to provide top research teams across the globe with accesses to critical resources in order to find better methods for detecting, treating, curing, and eventually preventing familial ovarian cancer.

 

Long-Term Survivor Study: If you are a 8 year or more stage III or stage IV ovarian cancer survivor, your participation can help to improve the treatment, survival, and survivorship of all women.

 

MyLifeLine: Join MyLifeLine, a service of the Cancer Support Community, to easily connect with friends and family to regain control and receive social, emotional, and practical support throughout your cancer journey.

 

4th Angel: 4th Angel is an innovative, interactive approach to cancer care in which newly diagnosed patients or caregivers are matched with trained volunteers. While emphasizing one-on-one contact, people are matched with mentors of similar age and cancer experiences to best empower caregivers and patients with knowledge, awareness, hope … and a helping hand.

 

Resources, Grants, Financial Help:

A ton of other resources can be found here: 

Retreats

 

MANY MORE LISTED HERE:

 

Free Wigs

 

 

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